Health/Life update 07/02/2024
2 years ago
General
Hello again folks. I have some somewhat good news for you, but of course there is the bad to get out of the way first.
I had a whole physiotherapy session dedicated to explaining my situation. Basically, it turns out I am chronically disabled. The hypermobility thing means that there is no real betterment in sight for me, only potentially reducing the current inflammation and trying to find ways to avoid movements/pressure on the hypermobile joints, as to avoid pain and inflammation again. But there is no operation or treatment so far to fix this hypermobility, I just have to hope that my ligaments hold for as long as possible haha
I still haven't had any luck getting any mobility help. I ended up stopping with the crutches because they made my arms hurt like crazy, and it was arguably worse for my legs, so I'm back with a walking stick, even though that's not good for my wrists. I have been pestering the hospital to visit me but they're taking their time, so I'm busy pestering them with phone calls and stuff.
The same applies for the other insurances and government entities that still haven't decide how much and when to give me aid, so basically I'm at the very end of my savings and really being a pain in the ass to these people.
On a lighter note, I will hopefully soon be getting a social assistant, who will do the pestering for me. The people at the psychiatric centre seem to be the only ones actually giving me any help/hope to find an actual solution, at least regarding my health and stability.
For now I'm still seeing the physiotherapists and trying different things to see what works.
On another note, I managed to land a mini job as an English teacher, which has been bringing me much joy. I only recently started, at the beginning of February, but it already gives me such satisfaction to see the students learn and talk with me, and I feel that i have a place in this economy other than trying to draw despite my pain.
The only missing piece currently in my life is a stable place to stay. As the money situation isn't getting solved, I'm still stuck living with my parents and going back and forth for 5 hours per trip to do stuff, which isn't ideal. But, slowly but surely, things are getting on track to stability. I'm trying my hardest to find the energy and time to draw, for you, for supporters, even just for myself, but having to keep up with all these people that just don't seem to be doing their job is frankly exhausting, and that's even without my disability.
I hope you can understand the situation and be patient with me, I'm mad at myself that I can't even bring myself to do one of my favorite things to do, which is drawing, and it upsets me that I have people supporting me and I'm not able to provide content for them. I really hope that things will settle soon enough, but at the very least, my complicated living situation will supposedly be solved in June, as I'll go back to living solo. This is my light at the end of the tunnel, and I think the final piece to this complex puzzle to find a form of stability in this currently very messy situation.
Sorry for the uber long message, I really want to be transparent with you folks as much as possible. I wish you all some serene times, even just a restful moment.
Take care, I love you all
-K065
I had a whole physiotherapy session dedicated to explaining my situation. Basically, it turns out I am chronically disabled. The hypermobility thing means that there is no real betterment in sight for me, only potentially reducing the current inflammation and trying to find ways to avoid movements/pressure on the hypermobile joints, as to avoid pain and inflammation again. But there is no operation or treatment so far to fix this hypermobility, I just have to hope that my ligaments hold for as long as possible haha
I still haven't had any luck getting any mobility help. I ended up stopping with the crutches because they made my arms hurt like crazy, and it was arguably worse for my legs, so I'm back with a walking stick, even though that's not good for my wrists. I have been pestering the hospital to visit me but they're taking their time, so I'm busy pestering them with phone calls and stuff.
The same applies for the other insurances and government entities that still haven't decide how much and when to give me aid, so basically I'm at the very end of my savings and really being a pain in the ass to these people.
On a lighter note, I will hopefully soon be getting a social assistant, who will do the pestering for me. The people at the psychiatric centre seem to be the only ones actually giving me any help/hope to find an actual solution, at least regarding my health and stability.
For now I'm still seeing the physiotherapists and trying different things to see what works.
On another note, I managed to land a mini job as an English teacher, which has been bringing me much joy. I only recently started, at the beginning of February, but it already gives me such satisfaction to see the students learn and talk with me, and I feel that i have a place in this economy other than trying to draw despite my pain.
The only missing piece currently in my life is a stable place to stay. As the money situation isn't getting solved, I'm still stuck living with my parents and going back and forth for 5 hours per trip to do stuff, which isn't ideal. But, slowly but surely, things are getting on track to stability. I'm trying my hardest to find the energy and time to draw, for you, for supporters, even just for myself, but having to keep up with all these people that just don't seem to be doing their job is frankly exhausting, and that's even without my disability.
I hope you can understand the situation and be patient with me, I'm mad at myself that I can't even bring myself to do one of my favorite things to do, which is drawing, and it upsets me that I have people supporting me and I'm not able to provide content for them. I really hope that things will settle soon enough, but at the very least, my complicated living situation will supposedly be solved in June, as I'll go back to living solo. This is my light at the end of the tunnel, and I think the final piece to this complex puzzle to find a form of stability in this currently very messy situation.
Sorry for the uber long message, I really want to be transparent with you folks as much as possible. I wish you all some serene times, even just a restful moment.
Take care, I love you all
-K065
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I'm hoping you can get help and independence again soon!