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Diagnosis explanation
a year ago
So, on older journals I talked about having PNES. Understandably, most are going to ask “what the fuck is PNES…?”
PNES is psychological non epileptic seizures. This is a cause of build up of pressure that is not released. Now to better explain this, most people when under lots of pressure would release this through rage and other activities, in my case I do not. Because of that, my body resorts to a rather harsh way to release that. Going motor.
PNES is often misdiagnosed as epilepsy because until brain waves are checked and someone knowledgeable of PNES the symptoms look almost identical.
The main causes of this is often associated with people who have went through traumatic experiences in their lives and this of course expands to many many areas.
Now, to clarify I am not terminally ill. This is very treatable and as of this year since diagnosis and after some events last year I’ve worked on my issues.
Often best solution is to read about it and then work on ways to release/reduce the anxiety and my solutions have been socializing with more friends, reading books, and scheduling my day setting some consistency. Until I can finish my trade I’ve also been intrigued by story writing, I’m rusty without question but it’s become a fun thing I’ve had and a way to offer something on my FA account and do something for people weather by a trade or in exchange for a gift card and so on. But until my trade is finished I’ve taken more focus on that especially since my school does not go easy and does not give an F weather it’s the first week of school or literally the week of Christmas.
Why do I post this here? Because my diagnosis to friends has been noticeable at times FOR THEM but for me, I may have several moments in the snap of a finger where I’ve been gone for several minutes. So at times a heads up is something I need. Despite me being able to cut the chances of one happening to near zero it never will be zero. But this is a clarification too because days it happens it will be noticeable to some that I may not be 100% myself sounding tired and or lost in thought.
Basically this is how my head goes in this video at 2:04 when I have an attack
https://youtu.be/HV04X-3ING8?si=rGVTXFIO05P8Hm_X
Alarm replicating my mind going blank while either locking up or going limp while conscious
The post effects I feel like I haven’t slept in two days and don’t have an idea what I’m doing in the room. But this isn’t a severe attack like in the shows and movies portraying seizures.
PNES is psychological non epileptic seizures. This is a cause of build up of pressure that is not released. Now to better explain this, most people when under lots of pressure would release this through rage and other activities, in my case I do not. Because of that, my body resorts to a rather harsh way to release that. Going motor.
PNES is often misdiagnosed as epilepsy because until brain waves are checked and someone knowledgeable of PNES the symptoms look almost identical.
The main causes of this is often associated with people who have went through traumatic experiences in their lives and this of course expands to many many areas.
Now, to clarify I am not terminally ill. This is very treatable and as of this year since diagnosis and after some events last year I’ve worked on my issues.
Often best solution is to read about it and then work on ways to release/reduce the anxiety and my solutions have been socializing with more friends, reading books, and scheduling my day setting some consistency. Until I can finish my trade I’ve also been intrigued by story writing, I’m rusty without question but it’s become a fun thing I’ve had and a way to offer something on my FA account and do something for people weather by a trade or in exchange for a gift card and so on. But until my trade is finished I’ve taken more focus on that especially since my school does not go easy and does not give an F weather it’s the first week of school or literally the week of Christmas.
Why do I post this here? Because my diagnosis to friends has been noticeable at times FOR THEM but for me, I may have several moments in the snap of a finger where I’ve been gone for several minutes. So at times a heads up is something I need. Despite me being able to cut the chances of one happening to near zero it never will be zero. But this is a clarification too because days it happens it will be noticeable to some that I may not be 100% myself sounding tired and or lost in thought.
Basically this is how my head goes in this video at 2:04 when I have an attack
https://youtu.be/HV04X-3ING8?si=rGVTXFIO05P8Hm_X
Alarm replicating my mind going blank while either locking up or going limp while conscious
The post effects I feel like I haven’t slept in two days and don’t have an idea what I’m doing in the room. But this isn’t a severe attack like in the shows and movies portraying seizures.
