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Chemo day +5
14 years ago
General
News from the Cookie's jar
First, i want to thanks all the people who are kind enough to think about me and support me in these trying times...
I dunno how i'd hold on without you guys..
Love you.
Loads.
*and i stop now or i'll cry again*
Well, my health is so-so stable, lots of problems sleeping, and other really nasty side effects reared their ugly heads.
I can list:
- my skin hurts allover like i've a gigantic sunburn (except i'm not red at all)... i feel like i'm wrapped in rice paper that will crack if i move..
- my sense of taste and smell went bazooka, and therefore, i've lost 4 kilos in one week - food doesn't taste good at all, so i've to force myself to eat.
Potatoes taste like dirt, cumcumbers like acid, tomatoes like metal..the smell of fries makes me gag.. so far only bread and chocolate retains their original tastes.
- i'm exhausted permanently and have troubles concentrating (i start to do something, then stop in the middle going like "what was i doing?" feels like i'm having early Alzheimer - sooo frustrating)
- i have phantom pain in missing teeth (WTF?)
- i get some nasty dizzy spells, even when sitting at my desk
- the worse for the end: my tongue looks like someone used a cheese grater on it.. i have so many mouth ulcers that you can't see it's surface anymore.. and that frakkin HURTS (making eating even less agreable)
But i'm holding on.
It can only get worse...
Can't they "switch me off" for the next 4 months and wake me when chemo is over? Please?
I dunno how i'd hold on without you guys..
Love you.
Loads.
*and i stop now or i'll cry again*
Well, my health is so-so stable, lots of problems sleeping, and other really nasty side effects reared their ugly heads.
I can list:
- my skin hurts allover like i've a gigantic sunburn (except i'm not red at all)... i feel like i'm wrapped in rice paper that will crack if i move..
- my sense of taste and smell went bazooka, and therefore, i've lost 4 kilos in one week - food doesn't taste good at all, so i've to force myself to eat.
Potatoes taste like dirt, cumcumbers like acid, tomatoes like metal..the smell of fries makes me gag.. so far only bread and chocolate retains their original tastes.
- i'm exhausted permanently and have troubles concentrating (i start to do something, then stop in the middle going like "what was i doing?" feels like i'm having early Alzheimer - sooo frustrating)
- i have phantom pain in missing teeth (WTF?)
- i get some nasty dizzy spells, even when sitting at my desk
- the worse for the end: my tongue looks like someone used a cheese grater on it.. i have so many mouth ulcers that you can't see it's surface anymore.. and that frakkin HURTS (making eating even less agreable)
But i'm holding on.
It can only get worse...
Can't they "switch me off" for the next 4 months and wake me when chemo is over? Please?
Par contre tu n'a pas eu le droit à des "drogues" pour atténuer la douleur?
Tiens le coup, c'est la tempête avant les beaux jours :)
Merci du soutien.. je sais que ça ne peut qu'empirer.. vraiment envie qu'on "m'éteigne" le temps du traitement...
Peut être que la marijuana serait plus adaptée, tu trouverai enfin un coté agréable à ta maladie...
de 2 l'odeur du cannabis me rend malade quand je suis dans mon état normal, déjà.. alors maintenant..
et de 3 les drogues comme ça, suis pas fan..
Mais merci:)
But stay strong! We are here for you girl! If anybody can do this it's you!
j'espere que tu iras bien
avec le temps parfois ca se calme
moi avec mon traitement y m'as tout de meme fallu qq chose comme six mois pour que les effets secondaire se calme
meme si ils on jamais disparu sigh
qq chose d'autre de pas mieux du tout sigh
(If they offer you a receipt for some Provital or something drinks - Try one first before you buy it - It tastes like fish-poop) D: :P
You should report those side effects to the doctor - do look for side effects list as well - some are to be immediately reported - eg. leg swelling
I kinda find them really severe for just 5th day D:
Do find out if you can get any bonuses on social services etc.
Also - Do try with cannabis - it helps _a lot_
It is best thru inhaler
And besides, it's illegal, in Belgium...;)
It is illegal here as well, but no one cares.
Permanent exhaustion: same thing.
Dizzyness can be a side effect of a low bloodsugar value due to the fact that you eat less since food tastes horrible. Better watch out with that one Cookie, you have to keep your bloodsugar level up otherwise you might end up with a blackout. And I can tell you from personal experience, THAT you DON'T want to happen.
Stay strong Cookie, I know you can beat it.
REPORT IT TO UR DOCTOR COOKIE!!
the sleep part they can help u with i think they should b able to give u a medicine for that. if not drink peperment or chamomile tea.
the ulcers in ur mouth arnt sapose to be so bad either. m grnmama had only3 at then ending day of her chemo but never anymore before and infact they happen lateron in ur treatment not early 0.0 espesialy this early.
ur very strong cookie u can make it thre this no problem. but when sideaffects seem so bad u needa report them imidialy to know if there giving u somethuing ur alergic to or what.
Signal has been boosted~! http://www.furaffinity.net/journal/3091736/
the only advice i can really give, is try to stick to a VERY healthy diet. lots of colorful fruits and veggies. i know it will/must be hard to eat at all. but all the fresh nutrients will help your body heal.
make sure to rest, and drink lots of fluids too, if you are throwing up, it is vital.
just try and keep yourself as healthy as possible, and stick out the treatments. i shall have you in my prayers!!
*HorseHugs*
im also not surprised that chocolate still has the same taste. it IS magical afterall.
anyway, im wishing you all the good luck in the world with your therapy and i hope you will get back to full health!
i wont pray since i dont believe in stuff like that but i will definitely keep you in my thoughts!^^