Oh my... I'm really sorry to hear that. I hope you're at least feeling slightly better compared to how you've felt in the past. :(

And no, I've never heard of a disease like this. ;c

Thank you! Unfortunately I'm worse than ever at the moment. x__x

Oh, geez. x_x
I really hope you find out what's been bothering you soon, it honestly pains me to hear that you're so sick. :(
Please keep trying your hardest to get through the pain and find out what's wrong. Sorry I can't really help, but I hope everything works out in the end. <3

The doctors here are fricking useless in England. I have the same as Miri, and have had no help whatsoever. They can run all the tests under the sun and still say that nothing is wrong. Ridiculous!
In the end, they just offer surgery, which is a bad bad choice. I declined the surgery, as it's very unsafe, only has a 50% chance of working, and even if it does work will loosen up and go back to normal again anyway in the end, so they say.

Sorry for the rant! I'm just so fed up with doctors saying there's nothing wrong with us, and throwing tablets at us that don't even work.

It's true, though I've had fantastic mental health care from the NHS, the physical help I've had has been lacking. I have a billion blood tests and ECGs because I'm on meds that mean I need monitoring, but still NOTHING'S WRONG YOU'RE FINE BYE.

On the other hand though, I have been to doctors in Germany about it too who were more thorough in their investigations but I also left empty handed in the end. It's so frustrating.

It really is frustrating. I've tried so many pills they told me to take, and none made a difference. Some of them even made me worse in other ways.

Yeah, I've had blood tests, endoscopies, ultrasounds, xrays, cat scans, all sorts!

Yep, I have the exact same! For years I've had GERD and these symptoms, I feel awful every single day, and the doctors can't find anything, so they just say "nothing is wrong". Well if nothing is wrong, why am I so sick??,

I feel sick every day, and have to stay home all day everyday. I get no exercise, and I'm thin from being so ill. I have to do my art in bed, and have to keep my stomach straight or I'll be in trouble!

Something which helps LOADS is if you have your bed raised up at the head at LEAST 6 inches. This stopped me feeling sick when I woke up! It works like a charm seriously.

I can help you loads more if you like, since we both have the same problems, I can tell you everything that helps me and my experience! I'm so so so so much better than I used to be, thanks to the things that I've been doing, so I'd be happy to share!

Just let me know :) We can note or email, or anything you like!

Oh gosh thanks so much!

Yeah, I've had GERD for 12 years now and it has always manifested itself as a chronic cough that makes me puke every morning, evening, and when I'm nervous. I occasionally felt sick waking up and eating and such, but nothing as bad as this. x___x I'm so sorry you've had to go through this too! It's just so frustrating. I hope we can both find some kind of solution soon. I'm thinking of perhaps drastically adjusting my diet long term, but it's so hard to know what's right. Just always feeling so dreadful.

I will try the raising my head to sleep again. I've tried it a few times before, but it always seemed to make the specifically acid reflux part of my GERD worse when I have my head up while sleeping on my back. I found the best has been to sleep on my stomach, but I still feel terrible. I'm going to try raising it a bit higher though, I feel confident it might help a little or at least change something! Should get one of those hospital-esque beds that can go up and down LOL

Yes it's so horrible, especially in the mornings :(

Raising only your head won't work at all, you have to literally raise the whole top end of the bed up. I have wooden stilts that I put underneath the legs at the top of the bed so that the whole bed tilts. It's amazing, and I haven't had a problem since. Something else that you should do is always sleep on your left side. If I don't sleep on my left side, I get very very sick. Sleeping on the left helps keep the acid in your stomach and not going up your oesophagus!

Yes I have adjusted my diet long term, and it has help me so so so much. I'm taking acidophilus probiotics too. They have been the thing that has helped me most, I can eat so many things now without a problem just thanks to these tablets. They help replenish the good bacteria in your gut which helps digestion. They're seriously amazing! I have the 1 billion active cultures one, (the lowest dosage). It took me a long time to get onto one tablet though. They upset my stomach when I tried having one at first (because they're strong, but they taste great! :P) So I cut it into quarters, and had one quarter for a week or two, then half etc etc. It's very normal for them to make you feel sick at first, but apparently that just means it's doing it's job. And it sure did! I'm so happy I pushed through it. They've made me so much healthier.

You can just buy them in your local health food shop (Mine isn't so local, but it's not far)

I would really really love to help you out on this, and perhaps help you create a diet plan? I would love to share my tips with you, because I've learnt so so much, and even had help from a special allergy therapist (even though I'm not allergic, she helped with my diet) so I know a lot!

Is there any way I can contact you and help you with this? (Doesn't have to be instant messaginv)

I will try all of these things! Thank you so much. If you could share some diet tips that would be fantastic! <3

You can contact me per email at miri@mirikun.com, or on Twitter @Mirikun, or on LINE - mirikun.

Excellent :) I will email you :)

can't tell if this is an infection or the celiac disease? maybe you should contact another doc >.<

You broke your foot and everything happened after this accident?

'Could be linked to the Meridian system in chinese medicine.
In acupuncture, feet are said to be connected to all parts of the internal organs.
http://en.wikipedia.org/wiki/Meridi.....nese_medicine)

I would recommand to see a Chinese acupunctor asap and tells him your story prior to any -useless- "standard" medication!
worth the try...

Dear Miri,

As a naturopathic specialist, I recommend you to stop taking medicine. Doctors get paid for suggesting medicine, all of them has a side effect, which will be more likely to occur if you take it regularly for a long time.

There are some medical devices we suggest to people like you, but sometimes it just not worth buying it. Consider testing the tap water at somewhere, that is mainly the cause when doctors can not really figure out your problem. Anyways, drink water. If you don't like the idea of buying bottled (non-carbonated), then you should buy a water purifier for your household. Have one? Use it. An average person should drink 2-3 liters of water a day. Only water. Other beverages do not count. Also, sometimes the filters inside needs to be replaced, it depends on the company. There are some fake companies, so it is worth buying a middle-priced one. Here in Hungary it is very common to use.

I could also suggest you some other stuff worth buying, but I think with some practical ideas you could also get better soon. So DO get better soon D:

Thank you! <3
I do drink several liters of still clean water a day. (: I've tried with filter, without, and from different countries/areas. So I hope that can help in the long run. As for the medication, I'm reluctant to stop taking any of the mental health related medications because they have really helped and I've been taking them for years now. Once I'm totally safe and better I will work on stop taking them. Unfortunately my stomach problems predate the medication. I'm not taking any of the ones that haven't helped.

What kind of worth-buying things do you mean? I'm willing to try everything! (: Thanks so much!

Well I definitely don't recommend you to invest on things you only want to try in this department. All these things require time of your life daily.

Simple concept: a human needs proper water, air and light.
If you are looking for a way to get rid of the mental health related medicine, you need light. In England too many people get depressed, because of the weather conditions mainly. With a light therapy device with a daily use of 2x7-10 minutes, depression could be stopped. Not only that, but it actually cures many different diseases fully - unlike medicine. Since medicines only treat symptoms, your health is getting worse in other ways. All medicines destroy your immune system. I kind of disagree with vitamin pills too, but that's only my opinion.
-light therapy is also recommended to healthy people, since it helps them keep up with being healthy.

Air filtering devices are for mainly the ones, who are allergic, or live inside a crowded part of the city. They usually need as much power a year as a TV does a week or less. That 3 thing is common here, and the numbers are growing. The best companies have lifetime warranties for that.

You should read what light therapy cures or actually helps you with. If the written things are not working, you can somewhere get your money back. Also, doctors use these in hospitals.. you pay around 8 pounds a day to get a 10 minute treatment.. For some people, that's an option too o3o

Oh, I do actually have a light therapy lamp that I use 20 minutes per day. (: It's great for depression but unfortunately I have some other issues too (psychosis etc). It's true, England is terrible for depression. The weather is absolutely miserable. So gloomy! I'm looking to move away asap (looks like I can get back to Germany in October) so I'm certain that that will help with my mood a lot. It's difficult because I really have tried without medication, and there were just times when I was too unwell. Of course the medication isn't a cure, but it's helped me keep stable while I work on getting properly better through therapy and such.

Don't listen to the quack. Do NOT stop taking your medicine!
This nonsense that modern medicine supposedly makes us sick makes me want to throw up...
It is true that some doctors prescribe stuff that is not necessary but those are rare cases.
You can't cure cancer with light and water. You can't even cure a common cold with that!
Looking out for what you put into your body isn't 'naturopathy', it's common sense.

I agree entirely.

While a doctor who says that nothing is wrong when something is obviously wrong clearly doesn't deserve to be paid nearly as much(or at all!), anyone who says that modern medicine is a scam has clearly never heard of what went down in the Dark Ages, and has no idea why that stuff has stopped now(or perhaps it has something to do with "higher holy energy vibrations").

If someone wants to avoid science for phony remedies, that's fine, if they croak it's just natural selection doing its thing, which is killing the weak and stupid to let the better creatures live to pass on their genes. However, they should NOT convince a normally intelligent person to do the same.

Bottom line: Do NOT listen to IcyWhiteCat or any other dumb science-denier on how to "help" yourself! Modern, scientific medicine is why we don't have the Black Death anymore, not "higher energy!"

Thanks so much! Yes, I'm definitely not planning to stop taking my medication. x__x

Apologies for interjecting, but yeah you can cure the common cold with natural remedies. You just can't cure cancer, mental health, and other more serious disorders like such.

Next time you have a cold: Drink water, rest, eat oranges, place an onion in your room to sanitize the air (DON'T eat the onion afterwards lol) and you should be fine. Trust me, I've had years of experience with that.

Sure, natural remedies. Vitamins bolster your immune system and lots of fluids help flush everything out. But my point was simply that you can't cure everything with light, water and proper breathing...
Naturopathics are even against vaccination... It is beyond me how someone can be this stupid. We have pretty much wiped out diseases through vaccination and now we are supposed to stop doing it!?

It's true. I don't understand how someone can be against vaccination when it's done nothing but good for our species. There have been a lot of deaths due to the random upsurge of anti-vaccine people, I wonder when they'll learn. *shakes head*

The worst are these "faith healers" in my opinion. Those christian fairy tale believers on TV who convince people that "GAWD HAS HEALED THEE!!111!!"... Then the patient stops taking their insulin because they fully believe that the magic monster in the sky has healed them and a week later they are found dead in their apartment because their diabetes killed them.
I hate religion anyway but that shit just makes me rage.

I agree that my statement could be misunderstood. I did not consider mental issues.
However all medicine could be reduced, or can be even fully abandoned. Not from moment to moment.

How much you know about modern medicines or cancer?
Medicine is a business. The doctors here actually get payed for writing medicines for their patients. In greater countries like Japan, doctors get payed after their healthy patients. Neither of these would be a problem, I just want to show you, that there's another point of view, than what you take in.

Did I mention, that light cures cancer? No. Even though there are references telling 'yes'. Does medicine cure cancer? Same thing. But do they want to cure you? No. They want you to pay your socks off. People having cancer buy medicines 100...0 times more expensive, than it actually costs to produce. That's the thing.
They do not want you to die, because you wouldn't pay more for them then. They do not want you to cure either, because it's a huge buisness.

Naturopathy should be a common sense, but it's not. That's why I invested time to study that. Since then I managed to get rid of all my medicines I was forced to take. Emphasized: Not moment by moment. I'm not telling everyone's a 100% able to do that. Light therapy even cuts of the quantity of your necessary medicines for people having # diabetes, because you take at least half of them later after the side effects you will more likely to have as time passes. Immune system and such common senses. I call that modern medicine, not pills or injections.

Anyways, I respect your point. You misunderstood me because you could.

First of all I would like you to define what you mean with "medicine". Because the way I define it that also includes surgery and vaccination, two things which are absolutely necessary to have.

I see your point of view as an asinine conspiracy theory. That is my issue with your whole argument! That doctors only prescribe medication to get more money. And as I said, in certain cases that is definitely the case but you can't lump every doctor together like that.
"But do they want to cure you? No. They want you to pay your socks off." And I want you to conclusively prove that to me. Because this point is exactly why I called you a quack. If you can't prove anything to me I simply can't believe any of your points you make here.

You got rid of all your medication that way? What did you have?
Also, what if someone has a completely broken pancreas? Would they be able to stop taking insulin at some point?

The idea that we wouldn't need medication that way is asinine. Medication, vaccination and proper hygiene are the reason why the mortality rate has dropped so much. And you want to get rid of that?

Also, what you call "naturopathy" shouldn't even have a name in my opinion. Going out more, eating properly and making sure that you only use fresh water isn't a special practice. It's what doctors want you to do anyway.

I'm not that good at defining even in my own language, but I guess it's everything you listed. I claim that you can fully prevent yourself, unless you're born with illnesses or such. Accidents always happen etc..

I can prove, you should not believe. I have written stuff, I have living references. Would that prove anything to you? You should get own references, you should not believe to anyone else in this case. I would not, at least.
You should also show me one doctor, who suggests honey with garlic for sore throat without prescribing pills next to it. Because I have none around here..

Don't mind my illnesses as well. I used to have mental problems related to Miri's, it's just neither you, nor I can tell if that was the therapy I was talking about or something else that cured me. I'm only saying it definitely wasn't my medical treatment, since I had been in front of a worst perspective according to doctors, than my current one back then. And then I found this, and everything turned better after a while.

I share your opinion. It's just weird you kind of tell me medication is an essential for a human being. It didn't really exist like.. 4000 years ago, but they still managed to survive somehow. I mean duuh? Of course surgery is great and all, it's just if people don't make steps to prevent illnesses (at least ON TIME), they will get into a spiral, where - not in all cases, but- there's a way out. Medicines would be great if humanity would expect more from the people who produce in that industry.

More people are switching to our ways. How could that be? Because people with might do not want that. It's understandable. They say: "Hey look! Those idiots bought an average lamp for a fortune, and they sit in front of it 20 minutes a day. That's the real scam, not us". The answer is: because it works, and it works the way you expect that. Even for you could be easy to find real references by now.

I apologize for interrupting but please DO NOT EVER encourage someone to get off their medication if it is helping them. You don't know this person's situation and so therefore you do not understand how getting off medication can effect their life. If you read the journal you would have learned that this person has Schizophrenia. Which is not something that will go away with self care and a little bit of light.

I, too, encourage homeopathy and in fact I was on a natural regiment of Saint John's Wort, Fish Oil, Sam-e, and a couple other things to help my variety of mental illnesses for a while until I attempted suicide and was forced onto medication for mental illnesses that are physically present in my brain. I, and many other mental health patients, have abnormal brain wiring and/or growth which can only be fixed by medication. I guarantee you, NONE of us want to be on medication.

That being said, I 100% agree that one should drink water, get an adequate amount of sunlight, exercise regularly, and eat right but these can only alleviate symptoms, NOT correct "faulty" wiring or brain development. And when someone is in a better position in their life and in a safe environment, I do encourage them to ease off medication but some people don't have the privilege of being able to do so.

Indeed, you're right. I did not fully consider the problem.

Thank you so much! <3 Dang, I'm so sorry you have to go through this. ): What a pain!

Yeah, I think the trapped gas thing might also be because I am (and have been my whole life) physically unable to burp LOL. I have literally never burped in my life. The only way I can release air upwards from my stomach is by puking. SO UNCOMFORTABLE. And again, the doctors say it's no problem and that there's nothing wrong with me. DURRR.

I will absolutely try the Peptac liquid. (: Thank you so much ahhh I'm so happy to be getting suggestions here! I'm so relieved that I'm not alone (as the doctors have lead me to believe!).

I hate to keep disagreeing with people, but the chest and shoulder pains are not caused by gas. These pains are usually just the spasms and pain from the actual acid refluxing. It can spread through your neck, back shoulders, all down your arms. It's an awful grinding pain, and I've had it many many times myself.

That's okay! Thank you for taking the time to help out!
Oh yes it may be that. But I can't deny the pain really does feel like trapped air. I feel like it's air that needs to be released? I'm not sure!

Absolutely! I'd be happy to accept your invite :)

Maybe I should give the surgery option a try too! I need to ask my doctor about more options. I've had so little help and have been given almost no options at all. x__x I've been so ill for ages and nobody even mentioned the possibility of surgery for me.

And yeah, I can't burp at all. Or, I guess I can but it means emptying the entire contents of my stomach rather than just air LOL. I'm not really willing to do that after eating to feel less sick. It just feels like I SHOULD be burping but it just doesn't happen. I can't!

Also yesss do get in touch on LINE! <3 Thanks so much! I'll keep fighting!

Miri, although I don't want to make your decisions for you, I don't recommend you get the surgery. I've done more than a fair share of research on the surgery over the years I've been ill and have even been offered it myself. But it's not a permanent fix, and only works 50% of the time in the first place.

The surgery consists of wrapping the upper part of your stomach around the bottom part of your oesophagus, to help tighten the sphincter. However, the surgery cannot be undone, and loosens up over time and usually puts people right back where they were.

I have to agree on the surgery part, surgery of any kind is allways a rist - no matter how small - and should be the very last option available... talk about it, learn, but try everything else first.

While it seems you are on your way to getting better - having found others with the same issue to share experience - it might be something to talk to your doc about the medication: you likely had some medication for the broken foot, and have others for years now.. time is a matter as you change slightly with age (alergies, resistance, just to say..), maybe one side effect started manifesting, maybe the med for the foot injure triggered something... not a cause, clearly, I am no specialist (just know first aid due to work), but theres ever a chance when having a few medications group together that something start afecting you weird... sudden changes (new meds, changing meds or stoping) can also trigger or cause their own side efects......

...and sorry, kind of ranting here... eh.. just talk to your doc if all these medications together have no side efect, and what... information is golden.

Just sharing my own no-medic view on the matter... hope you get better (all of you)! ^.^

Thank you! <3 Yes, I will definitely talk to my doctor about all of this. I won't just jump into surgery, but I do want to consider all the options and learn about them (:

aaaaaaaaaaare you sure you drink enough? cause i get aaaaaaaa looot of headaches and nausea from not drinking enough

Yeah, I drink several liters of clean water every day. ):

well then i guess it only helps me cause my daily gaming time is up to eight hours thats causing it o.o

im sorry to hear this, i cant really help. Im not to medically experienced.

sAME HERE. I don't have GERD (I don't really know what it is) but my health has been really poop for a long time now and it's made me gain weight :I I find even walking hard sometimes and I always feel terrible, but doctors don't know why. orz
hopefully we can sort it !!

It is realy hard to tell what this might be... Did you have mono before? Or any other disease that causes apathy and 'feeling like poop'?

I haven't, no!

I did, a few months ago, get salmonella which was a nightmare LOL. Was closely followed by viral labyrinthitis. I do believe both of these are all gone now, but perhaps they added to me getting weaker and weaker and ending up such a poor sick lump.

I'm asking because three months after I had mono I still felt awful and weak.

Sounds terrible! )8

While I had it I also coughed up a chunk of my tonsils :'D I had SO much fun with that...
I had it for three months. My throat was almost completely closed from being so swollen, I could only eat soup and I couldn't move much because I would have risked a ruptured spleen.
Mono is something I wouldn't wish upon my worst enemy.

Shiiiit! That's terrible!!

Trust me, it was. You constantly feel like poop, swallowing hurts, I had a constant headache...
And the worst part is that there is no medication against it. Your body has to get rid of it all by itself. All you can do is take painkillers.
Oh! And you become a carrier for life! XD That isn't very dramatic though. 95% of all people had it (usually as a child which then looks like a small flu), so 95% of all people are carriers for it. You do become immune to it though.

Any idea if it might be a gluten allergy? I have a friend who felt generally terrible most of the time - pain, lack of energy, stomach aches, etc.
Then she tried eliminating wheat/gluten from her diet and suddenly felt much, much better. Might be worth a try!

Thanks! <3
Yeah, unfortunately I've had all test and tried cutting out gluten for example. I don't have any allergies! IF ONLY IT WERE AN ALLERGY... ; 7 ;

I hope you feel better Miri, I have never experienced these kinds of symptoms. I guess it really depends on where you are living too? I live in Canada, that's for one thing. My house is very open and we have natural light coming through all the time. My whole family is very sensitive to smell, so we try to keep things ventilated at all times.

I also find that if you go and look at some natural green things first thing in the morning, it really eases your eyes and makes your body feel calm. I would sit and look at my backyard for like 15-30 mins. I draw a lot, so I tend to use my computer a tad bit much, so looking at natural things kinda soothes my eyes.

Another thing is, we try to be clean at all times. We clean the house at least 1-2 times a week. Dusty places make me feel sick most of the time.

I hope that you moving to Germany would ease some things up! The environment might be different there, so yay! Stay strong Miri!

Thanks!
YES, I absolutely agree that environment is a huge factor. Having lived in England for three years, I noticed a huge change in my health. Though summers are nice, the dark rest of the year has made my mood and health drop hugely. I'm hoping I can move back to Germany where the climate is much nicer. So hopefully this will help! I also have my place cleaned professionally once every two weeks. I really hope I can start making more money to have it done more often. Of course I can clean myself, but it's never as good.

But yes. Back to Germany where I can hopefully have more space, more light and a better mood and health! <3

Have they looked at other potential gastric diseases, or immune (since being female puts you at a much higher chance of getting an auto-immune disease)...like Celiac's or Crohn's?

I'm not sure, honestly! All I've really had is a bunch of blood tests, ECGs, allergy tests... I will ask about this though (:

I am not knowing you so much but I feel sorry to heard that.
I have psychology problem indeed and skin allergy issues. Where my skin allergy issues recently strikes back me few times recently.
But whatever you are, love urself. I believe everyone can pass through their own obstacles to have a better future life. Don't let it make you down. You still can make good art though

Thanks! Yeah, I hope we can get better soon.

I don'tknow exactly wwhat's causing the problem. I want to say it has to do with the digestive tract, but not quite sure. I hope you get to feeling better.

Thank you! <3

You're welcome.

I know nothing of medicine, so obviously I can't give you any advice, except for the obvious "finding a doctor who isn't a lazy, greedy, A-hole," which is pretty difficult to achieve anyway.

I just hope that you find something that helps you, and I'm sure all this support from your fans could give you hope for finding a cure.

Thank you! Yeah!
The thing is, I don't understand that doctors behave like that here. I live in England so healthcare is free. It would be more worth their time/money if they just got on with it. Like this they're just wasting their own time because I'll keep coming back for help until I'm better.

aaa i know that you said you don't think your medication causes it, but i take meds for depression/anxiety and they make me feel very sick sometimes, and affect my stomach. but since you haven't changed the dose or anything i don't think it would be the cause? :c

i really hope you feel better, though!! ;-;

Thank you!!
Yeah, the long term mental health meds tend to make me super sick in the first weeks of taking them, but it's all long cleared up!

Oh yes! This is actually the first thing I considered when I first started feeling especially bad. I have, however, switched countries during this time and I really don't think it could be the same issue in different climates. I don't know! Perhaps it's a mixture of the changes in humidity and pressure.

I'm sorry your not feeling well :<. I wish I had some sort of useful information. Unfortunately the only thing I have some ideas about is definitely not what you have. Hopefully things work out soon and you can feel better <3 !

Thank you! <3

All I can think is anxiety, but that's all I really have experience with. I've lived with a panic disorder for a while, and have actually been going through a thing where my head feels heavy, I feel drowsy, and I just need more sleep. I thought it was only a thing at home, where I know I can face a lot of traumatic stuff from my past I'm still working on, and as I'm very derpy due to dyspraxia I'm pretty much always gonna run into stuff that sets off a panic episode. A recent stay over at a friend's cements it as something I'm gonna have to ride out til I can see a doctor again. I can't help the tiredness, but oh god the sleep is good. Unless I have nightmares.

I wish I knew more about schizophrenia, I know at least two others battling it. I hope you can get to the root of all this.

Thank you!

I'm so sorry you have to go through that! Mental health issues are so exhausting. I've had schizophrenia for ages but it's well managed so it doesn't bother me at all. The depression is what, to me, is the really hard part. However, meds have helped me a bunch and also cleared up anxiety so I'm doing pretty well. :D

I don't think these issues are caused by anxiety. I know that my GERD/chronic cough acts up when I get nervous, however I can't believe that I'm getting THIS sick from just a bit of anxiety or stress.

Did they run any nasal tests, or any respatory ones?

Miri, have you ever considered that because your mood is down, that it's affecting your health because your body may be sensitive to the neurological chemicals associated with such moods? (I'm not a doctor so I wouldn't know exactly what is going on and what's responsible for your ailments, but that's my theory.)