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Health Update 1
10 years ago
if you need to contact me about anything at all, dont hesitate to note me. i'll try to get back to you ASAP
Hoo boy where do I begin. It's been a little while since I posted the last journal. But people wanted updates, so, when I'm able, I'll give them.
We finally got into a doctor who /cares/, and they scheduled 4 tests. I've only had 2 of the 4, but that's because the latter two are not something I can do with my health in the state it's in.
The first test, was a gastric emptying study. I've had this done a few years ago (2011? Don't recall.), it wasn't properly finished or followed up on. They redid that test, and found (just like they did last time) that I do not digest food, and if I do, it takes at least twice as long as a normal person to do so. I sat there for 4 hours, and food had not left my stomach. They assumed gastroparesis, and put me on meds for it. The meds don't work. My body seems to have a bad habit of failing to let meds work.
The second test was a pH esophageal test. Worst thing ever, by the way, I would never recommend it. I won't get results from that back until Christmas time. But they pretty much confirmed that I do have gastroparesis. I do not digest food, it sits in my stomach, and then I throw it up. I don't get nutrients and I'm losing a lot of weight, very fast. It's very reminiscent of in 2011, when I eventually fell down to 90lbs. I've probably had it since then.
There is no cure for this illness, all that can be done is some dietary changes to hope it helps, and medication (but so far, none of it's worked.) I go in to see a dietitian soon, but I feel like it's going to be trial and error.
I'm still trying, but I have to wonder how long it'll last before I fall down to being the 90lb person I used to be. I'm not very hopeful right now, I apologise. It's very disheartening knowing you're wasting away and there's not much to be done about it. In addition to the possible new issues that may arise from the results of the pH test.
My mom wants me to be taken into the hospital to at least be put on an IV again, but the hospital refuses to take me. So we'll see.
Thank you all for being concerned, and for being patient. I'm sorry for everything.
We finally got into a doctor who /cares/, and they scheduled 4 tests. I've only had 2 of the 4, but that's because the latter two are not something I can do with my health in the state it's in.
The first test, was a gastric emptying study. I've had this done a few years ago (2011? Don't recall.), it wasn't properly finished or followed up on. They redid that test, and found (just like they did last time) that I do not digest food, and if I do, it takes at least twice as long as a normal person to do so. I sat there for 4 hours, and food had not left my stomach. They assumed gastroparesis, and put me on meds for it. The meds don't work. My body seems to have a bad habit of failing to let meds work.
The second test was a pH esophageal test. Worst thing ever, by the way, I would never recommend it. I won't get results from that back until Christmas time. But they pretty much confirmed that I do have gastroparesis. I do not digest food, it sits in my stomach, and then I throw it up. I don't get nutrients and I'm losing a lot of weight, very fast. It's very reminiscent of in 2011, when I eventually fell down to 90lbs. I've probably had it since then.
There is no cure for this illness, all that can be done is some dietary changes to hope it helps, and medication (but so far, none of it's worked.) I go in to see a dietitian soon, but I feel like it's going to be trial and error.
I'm still trying, but I have to wonder how long it'll last before I fall down to being the 90lb person I used to be. I'm not very hopeful right now, I apologise. It's very disheartening knowing you're wasting away and there's not much to be done about it. In addition to the possible new issues that may arise from the results of the pH test.
My mom wants me to be taken into the hospital to at least be put on an IV again, but the hospital refuses to take me. So we'll see.
Thank you all for being concerned, and for being patient. I'm sorry for everything.
My best wishes for you, I hope there's some kind of work-around or best-case scenario that can be given to you. Stay strong, gurl! <3
Thank you though. It means a lot. I'm doing what I can. There's not much right now, but maybe in time.
Keep your chin up, though. I know it's hard, but it helps.
It just gets tiresome living each day like this, getting worse. But I'm still here, for now.
It's kind of hard to hope for a miracle when you've been fighting so long and getting nothing, but I hope the results yield something.
Stay strong and concentrate on healing, we'll be cheering for you, because you deserve all the love and affection you can get. I miss you, that I have to admit, I avoided pestering you on Skype because I don't want you to waste precious energies, but let me tell I still keep you in my mind, you're a good friend and a nice person altogether.
I don't know if I can heal, but I'm. Trying to do, something, I guess. Make it easier. Nothing's worked yet so it's kind of... depressing. It's nice though, and uplifting to know that people here have my back and are supporting me and caring about me, it means a lot. It really does.
I'm sorry I haven't been able to be around. I don't have any energy. I don't want to speak to people and then just vanish (which, normally does happen.) I get tired very fast. I can talk every once in awhile, I just want people to understand that I leave for a reason, and that I don't pop by for a reason, not that it's against anyone or that I don't want to talk to them. I miss you too.
So thank you, for all you've said <3
Honestly I can't even fathom how frightening and uncertain it must be to have your body working against you actively. The fact that you're going through all this and are still concerned with others really shows your strong character.
Get well soon.
And it means a lot more so that you've given me such compliments-- thank you ever so much. Your words mean a lot. People's support is basically what's keeping me going to try all of this at all.
Thank you again. I'm doing my best. And it means a ton to hear people say I'm strong too... never thought I was but I just might be through all of this.