While I can't say I'm not disappointed, I will say that you need to take care of you, first and foremost. Hope you find treatment or PT that helps mitigate the worst of it.

Take care of yourself, man.

I hope you manage to mitigate your symptoms! Unfortunately with some diseases the solution is learning how to make them livable.

Not sure what your specific hookups on writing are, but if it's sitting or bright monitor related, have you considered software like Dragon Professional? I know it's not directly analogous, but I have a friend with terrible sciatica, and he can't sit or stand in place; he writes pretty much everything while walking through his neighborhood. Speech recognition has gotten amazing in recent years, it does a much better job with punctuation and structure, meaning less editing.

If it's focus or constant pain/discomfort issues, then I can only apologize. Not being able to lead your life is absolutely the worst part of disability and disease. You'll learn how to recover your time, but patience is going to be required :(