Very difficult situation for me.
4 years ago
I thought that it is abotu time to update everyone on this. Ive been living with it for a few weeks now.
A few weeks ago my mother was diagnosed with Creutzfeldt-Jakob disease. It is a very rare brain degenerative disorder that is 100% fatal with nearly all deaths occuring within one year of diagnosis.
In under 2 weeks my mother has gone from being very forgetful and unsure of her surroundings to being in bed sleeping almost all day and unable to care for herself or feed herself. The disease happens extremely fast.
Last weekend i visited her taking time off work. It was a very hard trip filled with anxiety, fnancial troubles, and huge huge fights with my father, I also knew that after I left, that would be the last time i would speak to her in person alive.
My goodbyes felt incomplete.. I didnt even know what to say to her about out lives except to thank her long ago for making a small kings robe for my little plush tiger as a teen... even though she was really resistant about the idea of me having stuffed animals at age 14.
This event combined with having a new job that is 60 hours a week has made it hard for me to produce any art. and also made my last big project miss its deadline by 4 months.
I dont know what the future will hold for me but im trying to determine what of value i will have in it and what will happen to me as I now cross the middle of my life and prepare for the last half of it.
A few weeks ago my mother was diagnosed with Creutzfeldt-Jakob disease. It is a very rare brain degenerative disorder that is 100% fatal with nearly all deaths occuring within one year of diagnosis.
In under 2 weeks my mother has gone from being very forgetful and unsure of her surroundings to being in bed sleeping almost all day and unable to care for herself or feed herself. The disease happens extremely fast.
Last weekend i visited her taking time off work. It was a very hard trip filled with anxiety, fnancial troubles, and huge huge fights with my father, I also knew that after I left, that would be the last time i would speak to her in person alive.
My goodbyes felt incomplete.. I didnt even know what to say to her about out lives except to thank her long ago for making a small kings robe for my little plush tiger as a teen... even though she was really resistant about the idea of me having stuffed animals at age 14.
This event combined with having a new job that is 60 hours a week has made it hard for me to produce any art. and also made my last big project miss its deadline by 4 months.
I dont know what the future will hold for me but im trying to determine what of value i will have in it and what will happen to me as I now cross the middle of my life and prepare for the last half of it.
I'm very sorry to hear that.
I wish you all the luck in the world & my prayers are with you & your mom.
take care of yourself as best you can