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October is coming, and with it the Pinktober, the Breast Cancer Awareness and its Pink Ribbon.
But how many of you know the others ribbons and their causes?
Today I would like to talk about the Disease with a Thousand Faces, the Multiple Sclerosis and its Orange Ribbon.
I admit I barely knew anything about that condition until lately. But many persons around me have that condition and suffer of it in a deafening silence.
An auto-immune disease that is attacking the insulating covers of the nerves - the myeline - that's not as sexy as breast. And as a result, only one day for its awareness, the 30th May.
No cure possible as it's auto-immune, just to smoother the symptoms.
... If we manage to diagnose that disease.
A friend was telling me she represented that condition as a zebra. Some stripes as the relapses, days when it's alright, days when it's falling apart.
Aside from falling on one of these outbreaks, doctors can hardly diagnose this disease apart from MRI.
Is it a horse? Is it a donkey? White or black? No, it's a zebra. A silent and above all inexorable disease that can be remittent by relapses or progressive, to the thousand symptoms from which Disease to Thousand Faces.
This autoimmune disease does not have this media coverage as the Pink Ribbon, but we can talk about it, and hope that drug treatments improve, and that the benefit-risk factor is always positive for each patient.
That's what I wish, that's what we all want.
So happy orange ribbon, happy pink ribbon, and cherish each of these people~
And forgive my French~
Octobre arrive, avec son mois dédié au Ruban Rose, symbole de la lutte contre le Cancer du Sein.
Mais peu d'entre nous connaissent d'autres rubans et leurs causes associées.
Aujourd'hui je voudrais parler de la Maladie aux Mille Visages, la Sclérose En Plaques (SEP) et de son Ruban Orange
Je n'y prêtais qu'une attention somme toute relative jusqu'à dernièrement. Mais plusieurs personnes dans mon entourage en souffrent, dans un silence assourdissant.
Une maladie auto-immune qui s'attaque à la gaine des nerfs - la myéline - c'est pas aussi sexy que des seins. Et du coup, ca n'a qu'un jour à l'année à l'honneur, le 30 mai.
Pas de cure possible, juste atténuer les symptômes.
... Pour peu qu'on diagnostique cette maladie.
Une amie me disait qu'elle le représentait comme un zèbre. Des zébrures comme autant de poussées de maladie, des journées où ca va, d'autres où tout s’effondrent.
Hormis tomber pile sur une de ces poussées, les docteurs savent difficilement diagnostiquer cette maladie en dehors d'IRM.
Est-ce un cheval? Est-ce un âne? Blanc ou noir? Non, c'est un zèbre. Une maladie silencieuse et surtout inexorable qui peut être rémittente par poussées ou progressive, aux mille symptômes d'où la Maladie aux Mille Visages.
Cette maladie auto-immune n'a pas cette couverture médiatique qu'à le Ruban Rose, mais nous pouvons en parler, et espérer que les traitements médicamenteux s'améliorent, et que le facteur bénéfice-risque soit toujours positif pour chaque patient.
C'est ce que je souhaite.
Alors joyeux ruban orange, joyeux ruban rose, et chérissez chacune de ces personnes~
Inktober? Pinktober? Why wouldn't we do a Ribbontober instead? Each day its ribbon and cause. Would be such a noble cause actually. Wish I had more time for myself...
Karneol © Karnetia
karnetia
Art © Amiral Aesir
Watercolors and inks, the 28th September 2019
But how many of you know the others ribbons and their causes?
Today I would like to talk about the Disease with a Thousand Faces, the Multiple Sclerosis and its Orange Ribbon.
I admit I barely knew anything about that condition until lately. But many persons around me have that condition and suffer of it in a deafening silence.
An auto-immune disease that is attacking the insulating covers of the nerves - the myeline - that's not as sexy as breast. And as a result, only one day for its awareness, the 30th May.
No cure possible as it's auto-immune, just to smoother the symptoms.
... If we manage to diagnose that disease.
A friend was telling me she represented that condition as a zebra. Some stripes as the relapses, days when it's alright, days when it's falling apart.
Aside from falling on one of these outbreaks, doctors can hardly diagnose this disease apart from MRI.
Is it a horse? Is it a donkey? White or black? No, it's a zebra. A silent and above all inexorable disease that can be remittent by relapses or progressive, to the thousand symptoms from which Disease to Thousand Faces.
This autoimmune disease does not have this media coverage as the Pink Ribbon, but we can talk about it, and hope that drug treatments improve, and that the benefit-risk factor is always positive for each patient.
That's what I wish, that's what we all want.
So happy orange ribbon, happy pink ribbon, and cherish each of these people~
And forgive my French~
Octobre arrive, avec son mois dédié au Ruban Rose, symbole de la lutte contre le Cancer du Sein.
Mais peu d'entre nous connaissent d'autres rubans et leurs causes associées.
Aujourd'hui je voudrais parler de la Maladie aux Mille Visages, la Sclérose En Plaques (SEP) et de son Ruban Orange
Je n'y prêtais qu'une attention somme toute relative jusqu'à dernièrement. Mais plusieurs personnes dans mon entourage en souffrent, dans un silence assourdissant.
Une maladie auto-immune qui s'attaque à la gaine des nerfs - la myéline - c'est pas aussi sexy que des seins. Et du coup, ca n'a qu'un jour à l'année à l'honneur, le 30 mai.
Pas de cure possible, juste atténuer les symptômes.
... Pour peu qu'on diagnostique cette maladie.
Une amie me disait qu'elle le représentait comme un zèbre. Des zébrures comme autant de poussées de maladie, des journées où ca va, d'autres où tout s’effondrent.
Hormis tomber pile sur une de ces poussées, les docteurs savent difficilement diagnostiquer cette maladie en dehors d'IRM.
Est-ce un cheval? Est-ce un âne? Blanc ou noir? Non, c'est un zèbre. Une maladie silencieuse et surtout inexorable qui peut être rémittente par poussées ou progressive, aux mille symptômes d'où la Maladie aux Mille Visages.
Cette maladie auto-immune n'a pas cette couverture médiatique qu'à le Ruban Rose, mais nous pouvons en parler, et espérer que les traitements médicamenteux s'améliorent, et que le facteur bénéfice-risque soit toujours positif pour chaque patient.
C'est ce que je souhaite.
Alors joyeux ruban orange, joyeux ruban rose, et chérissez chacune de ces personnes~
Inktober? Pinktober? Why wouldn't we do a Ribbontober instead? Each day its ribbon and cause. Would be such a noble cause actually. Wish I had more time for myself...
Karneol © Karnetia
karnetiaArt © Amiral Aesir
Watercolors and inks, the 28th September 2019
Category Artwork (Traditional) / Fanart
Species Cheetah
Size 927 x 1280px
File Size 1.35 MB
Thank you for creating this little drawing but with a big meaning ♥ You know I very much appreciate the awareness you try to raise here and I really love your rendition of it, especially the idea with including my character in it and the idea of the chains.
I'm really glad some other people think the same and seem to support this.
Everyone who is suffering from that disease is dealing with it differently. You don't always "see" if someone is struggling just because they are not in a wheelchair yet. Especially those who try to hide how they really feel and pretend everything is okay to not bother the poeple who are close to them. Some may not want to admit or even realize that in some cases it is the disease striking if they are struggling with something, pretty like in my case... It's a disease with a "thousand faces" after all and you can never know WHEN it will strike again. Is my fatigue related? Is my short-term memory loss related? When I'm mixing up words, is it related? If I drop things, is it related or am simply that clumsy? People would be surprised if they know about whatever the symptoms MS CAN have.
There is no cure and my medication just slows the progression. Everyday there are thoughts creeping around my mind like "would I end up in a wheelchair - and when? Would I lose my vision? Could I still draw?" and so on and so on.
But with every day that I'm fighting I remember how long I'v beaten the MS yet. Everyday I was able to stand up and do what I want to do.
But still... it's a time bomb that's ticking without a countdown you can watch. When it blows off, it will be too late. You can't predict it.
And that scares me.
This is my story, my feelings, my thoughts and how I'm dealing with it. I'm a warrior of MS and I didn't ask for it. But I don't want your pity. I just want some understanding, some empathy for what I'm dealing with: some (invisible) battle against my own body.
Thanks to everyone who has thoughts for that disease.
And once again thank you for creating this piece, chéri ♥
I'm really glad some other people think the same and seem to support this.
Everyone who is suffering from that disease is dealing with it differently. You don't always "see" if someone is struggling just because they are not in a wheelchair yet. Especially those who try to hide how they really feel and pretend everything is okay to not bother the poeple who are close to them. Some may not want to admit or even realize that in some cases it is the disease striking if they are struggling with something, pretty like in my case... It's a disease with a "thousand faces" after all and you can never know WHEN it will strike again. Is my fatigue related? Is my short-term memory loss related? When I'm mixing up words, is it related? If I drop things, is it related or am simply that clumsy? People would be surprised if they know about whatever the symptoms MS CAN have.
There is no cure and my medication just slows the progression. Everyday there are thoughts creeping around my mind like "would I end up in a wheelchair - and when? Would I lose my vision? Could I still draw?" and so on and so on.
But with every day that I'm fighting I remember how long I'v beaten the MS yet. Everyday I was able to stand up and do what I want to do.
But still... it's a time bomb that's ticking without a countdown you can watch. When it blows off, it will be too late. You can't predict it.
And that scares me.
This is my story, my feelings, my thoughts and how I'm dealing with it. I'm a warrior of MS and I didn't ask for it. But I don't want your pity. I just want some understanding, some empathy for what I'm dealing with: some (invisible) battle against my own body.
Thanks to everyone who has thoughts for that disease.
And once again thank you for creating this piece, chéri ♥
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