
It's just been one of those days. I'm very far from seeing a neurologist, just seeing my new medical doctor on Wednesday.
It's getting worse. I had another long few hours of really severe twitching and spasming, weakness all over. I've not been this scared for a while.
What maybe is more frightening is implications from other health conditions in the family / my history. I survived Spinal Meningitis, and my mother has developed Multiple Sclerosis. Grandma on dad's side has Parkinsons, dad inherited low-dopamine symptoms.
I'm only 30.
Also scary is the risk of paralytic Ataxia, which I can't completely rule out either. That stuff can cause you to just *stop breathing*, which is fucking scary. I don't need this stress but it comes to me like it or not.
If I don't learn what to rule out, it'll not be checked.
I'm trying so fucking hard. Earlier today I had to just fling my entire right hand at the keyboard so I could smash the Enter key, and was down to hunt and peck because touch typing was too hard with the loss of control and twitching/tremors. Also bad is it could be my medication
Just uh. Anticipate delays. Thank you.
It's getting worse. I had another long few hours of really severe twitching and spasming, weakness all over. I've not been this scared for a while.
What maybe is more frightening is implications from other health conditions in the family / my history. I survived Spinal Meningitis, and my mother has developed Multiple Sclerosis. Grandma on dad's side has Parkinsons, dad inherited low-dopamine symptoms.
I'm only 30.
Also scary is the risk of paralytic Ataxia, which I can't completely rule out either. That stuff can cause you to just *stop breathing*, which is fucking scary. I don't need this stress but it comes to me like it or not.
If I don't learn what to rule out, it'll not be checked.
I'm trying so fucking hard. Earlier today I had to just fling my entire right hand at the keyboard so I could smash the Enter key, and was down to hunt and peck because touch typing was too hard with the loss of control and twitching/tremors. Also bad is it could be my medication
Just uh. Anticipate delays. Thank you.
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Man, it's hard enough having to go through something this scary if you didn't have to worry about making ends meet the whole time as well. And naturally it kicks into gear in the middle of a pandemic. Whatever you gotta do, whatever it takes to get through this, know that we're here for support. Wake and I will help whatever way we can~
Not sure if it's what you have, but I used to have full body tremors somewhat often (every few months) and had no idea what they were until eventually I found out it was caused by extreme anxiety. Had no clue anxiety could just make your entire body uncontrollably shake (I went to the ER once because it was so bad I could barely walk and I was terrified), but once I learned that it helped a shit ton with controlling it. Makes it a lot less scary now since when it happens I can just keep telling myself that it'll pass, I just have to calm down. Haven't had an issue with it for quite a while since I figured that out, and if it does it's a lot shorter and a lot less severe.
Anyways, take that with a grain of salt since medical stuff is so hard to pinpoint, but I hope maybe it helps :) It's scary as hell not knowing what the cause is.
Anyways, take that with a grain of salt since medical stuff is so hard to pinpoint, but I hope maybe it helps :) It's scary as hell not knowing what the cause is.
Oh shit man.. I remember your treatment stuff seemed to have been going really well
Sorry to hear that things have been getting worse. I really hope it gets sorted out soon, either figuring out yourself or with a doctor.
You are a genuinely great dude, don't deserve the calvacade of shit that life seems to be throwing at yah constantly.
Sorry to hear that things have been getting worse. I really hope it gets sorted out soon, either figuring out yourself or with a doctor.
You are a genuinely great dude, don't deserve the calvacade of shit that life seems to be throwing at yah constantly.
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