I was born with Fibrodysplasia Ossificans Progressiva: my muscles calcify after trauma, turning into bone permanently. There are 800-900 Dx 🌏.

There is no cure, and the first drug treatment was approved in 2023!

The official symbol for rare diseases in the US is the zebra, for its unique stripes. Social media hashtags include #ShowYourStripes & #ShowYourColors, using RDD's colours.

This year I decided to use my OC Gazza, to also get something done for FebROOary :V

🧬 www.IFOPA.org
www.rarediseaseday.org 🧬