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Hello everyone, first of all I want to thank everyone who has helped with my health situation over my gofundme.
I wanted to tell how things has been doing, and since journals are harder to see, I thought of making a submission instead.
What has been found?
Short version:
The good news is that some of my test has shown positive results and I dont need extra medication for the time being. (I still need my usual meds). With the exception of Dupilumab but is unrealistic I can pay it. More details below.
The bad news is that my current situation needs tons of treatment and some is still unknown on whats going on.
Detailed version:
My "general malaise" is still unknown. I have described this feeling as if someone put "dirty water" in my blood at random times, and like if my skin or body had a sensation of "goosebumps" that never comes, similar to licking a small battery, but rather than just the tongue, it feels in all the body. I also have mentioned to doctors I feel my tongue as if I put it in hot water at random times.
The first suspected culprit is my Hyper IGE. I cannot fix it easily because the medication needed (Dupilumab/Dupixent) is extremely expensive, so I cannot get it through money, as I would need it for life and the dosage is monthly. So I'm trying to get into a program where I can get it for free, but it may take multiple months and may fail, so thats still an unknown outcome.
The second suspected culprit is my Addrenal Insuficiency. Caused by the medicine I used to treat symptoms for the Hyper IGE, (Prednisone). Because of that my body kind of broke and provokes a lot of unspecified symtpoms sometimes, my endocrinologist says some of the symptoms I describe match with my insuficiency, but some don't.
Regardless we will attempt to wake up my adrenal glands by reducing the medicine slowly. This is kind of a risk since if I dont take my medicine even for 1 day it can put me in fatal danger, so we will attempt to reduce it very slowly and check my glands react again, otherwise I'll be stuck with Prednisone for life too.
The other culprits was suspecting of MCAS, but blood test came out negative, so that's not it. I also took general blood tests and other exams and they didn't show anything revealing aside from some small adjustments.
There is another 2 which I havent been able to do since doctors wants to discard in certain order.
One is doing a Magnetic Ressonance, I didn't had this test in consideration and is kind of expensive, so I'm trying to decide if using the remaining funds here or keep the funds for medicine supplies for another 2-3 months. One of my doctors didnt really think one of those tests will show anything but there is no way to know without doing it.
The other is Dysautonomia, but I got told to hold it until I discard everything else since the tests available are mostly heart related (which according to my Cardiologist, Im ok at the moment after some exams like Holther and heart monitoring) and I haven't fainted or such, so it may not show anything yet. But like the above, cannot be sure until I try.
Lastly, I went to a psyquiatrist since multiple of my doctors suspected of severe anxiety attacks and stress causing my malaise, I attempted to try Sertraline, but things didn't go smoothly, at the seventh day I felt my mind "completely wrong", it was pretty bad so I got told to stop taking it. In the end I ended up with Alprazolam which I already had for anxiety spikes and got sent to "cognitive behavioral therapy", which I'll start soon.
I still have some funds left but is difficult to decide if using it in a test with low chances of showing something or keep it for my medicine supplies, is annoying to admit it but I do still need help, if you want to keep supporting me for my health treatment you can do it in my gofundme. I'm trying to cover the funds wiht my income too but all of this is like finding a needle in a haystack and cannot cover everything.
As for my asthma, this is the condition that is mostly under control, I need 3 inhalers but can't complain as long my lungs works properly ^^u
You wish to support me further? https://gofund.me/2affc62bc
Again, thank you for all your help, without your support I wouldn't have been able to do all these health examns, research and medicine supply. And even if I haven't been able to fix it, I made a lot of progress.
I'll update again once I know more.
I wanted to tell how things has been doing, and since journals are harder to see, I thought of making a submission instead.
What has been found?
Short version:
The good news is that some of my test has shown positive results and I dont need extra medication for the time being. (I still need my usual meds). With the exception of Dupilumab but is unrealistic I can pay it. More details below.
The bad news is that my current situation needs tons of treatment and some is still unknown on whats going on.
Detailed version:
My "general malaise" is still unknown. I have described this feeling as if someone put "dirty water" in my blood at random times, and like if my skin or body had a sensation of "goosebumps" that never comes, similar to licking a small battery, but rather than just the tongue, it feels in all the body. I also have mentioned to doctors I feel my tongue as if I put it in hot water at random times.
The first suspected culprit is my Hyper IGE. I cannot fix it easily because the medication needed (Dupilumab/Dupixent) is extremely expensive, so I cannot get it through money, as I would need it for life and the dosage is monthly. So I'm trying to get into a program where I can get it for free, but it may take multiple months and may fail, so thats still an unknown outcome.
The second suspected culprit is my Addrenal Insuficiency. Caused by the medicine I used to treat symptoms for the Hyper IGE, (Prednisone). Because of that my body kind of broke and provokes a lot of unspecified symtpoms sometimes, my endocrinologist says some of the symptoms I describe match with my insuficiency, but some don't.
Regardless we will attempt to wake up my adrenal glands by reducing the medicine slowly. This is kind of a risk since if I dont take my medicine even for 1 day it can put me in fatal danger, so we will attempt to reduce it very slowly and check my glands react again, otherwise I'll be stuck with Prednisone for life too.
The other culprits was suspecting of MCAS, but blood test came out negative, so that's not it. I also took general blood tests and other exams and they didn't show anything revealing aside from some small adjustments.
There is another 2 which I havent been able to do since doctors wants to discard in certain order.
One is doing a Magnetic Ressonance, I didn't had this test in consideration and is kind of expensive, so I'm trying to decide if using the remaining funds here or keep the funds for medicine supplies for another 2-3 months. One of my doctors didnt really think one of those tests will show anything but there is no way to know without doing it.
The other is Dysautonomia, but I got told to hold it until I discard everything else since the tests available are mostly heart related (which according to my Cardiologist, Im ok at the moment after some exams like Holther and heart monitoring) and I haven't fainted or such, so it may not show anything yet. But like the above, cannot be sure until I try.
Lastly, I went to a psyquiatrist since multiple of my doctors suspected of severe anxiety attacks and stress causing my malaise, I attempted to try Sertraline, but things didn't go smoothly, at the seventh day I felt my mind "completely wrong", it was pretty bad so I got told to stop taking it. In the end I ended up with Alprazolam which I already had for anxiety spikes and got sent to "cognitive behavioral therapy", which I'll start soon.
I still have some funds left but is difficult to decide if using it in a test with low chances of showing something or keep it for my medicine supplies, is annoying to admit it but I do still need help, if you want to keep supporting me for my health treatment you can do it in my gofundme. I'm trying to cover the funds wiht my income too but all of this is like finding a needle in a haystack and cannot cover everything.
As for my asthma, this is the condition that is mostly under control, I need 3 inhalers but can't complain as long my lungs works properly ^^u
You wish to support me further? https://gofund.me/2affc62bc
Again, thank you for all your help, without your support I wouldn't have been able to do all these health examns, research and medicine supply. And even if I haven't been able to fix it, I made a lot of progress.
I'll update again once I know more.
Currently I'm struggling with health, if you are willing to help you can donate to help me cover my medicine expenses, Thank you: https://gofund.me/6b07adda5
If you want to support my art, consider supporting me over 
https://subscribestar.adult/dm-team
My Subscribestar team consist in 
Meraence and 
F-Yoshi
My game Delve Into Pawssion: (Early Access):
https://subscribestar.adult/dmquetzalli
Itchio: https://dmquetzalli.itch.io/delve-into-pawssion
Steam: https://store.steampowered.com/app/.....Into_Pawssion/
Category Artwork (Digital) / All
Species Unspecified / Any
Size 1280 x 1280px
File Size 477.7 kB
To put it simply: CBT is an acronym of a kink that is masochistic in nature. Thus the irony of their statement, because in intended context it makes sense...
if taken as the kink, it sounds more like you have a punishment fetish and feel like you deserve it.
edit: Fun Fact, After looking up the word... CBT would probably be an Initialism, not an acronym. Acronyms are 'words' made of letters from the title (NASA is pronounced as a word), while initialisms are what most people also call acronyms. (FBI, NFL, HOA, etc. are read as the letters, not a word)
if taken as the kink, it sounds more like you have a punishment fetish and feel like you deserve it.
edit: Fun Fact, After looking up the word... CBT would probably be an Initialism, not an acronym. Acronyms are 'words' made of letters from the title (NASA is pronounced as a word), while initialisms are what most people also call acronyms. (FBI, NFL, HOA, etc. are read as the letters, not a word)
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