It is with great sadness, for me to announce my son lost his battle with HLHS. He fought hard and long his whole life and just couldn’t do it anymore. It happened so fast, but he went so peaceful and painless. My son has been battling a nasty complication from his last heart surgery he had in November. Called protein loosing enteropathy. (PLE) it’s where the proteins from your blood leak out of your gut and into your belly/stool. He was on the severe end of it. We were discharged from hospital on Thursday, today he was supposed to get a PICC line (a special iv that goes near the heart that blood can be taken from and meds administered) and he was supposed to get iron and albumen (blood proteins) transfusions tomorrow. Ever since we got home from hospital he slept on the couch, vomiting every day multiple times a day, only words I’ve heard come out of his mouth was “water” and “up” yesterday morning I knew something was off but he was still there he was able to sit up, puke, tell you what he needed. Later that day I sat down to check his blood oxygen levels, I couldn’t get a reading at all, his temp wouldn’t read on the machine it would just say “low” and he was starting to work hard at breathing, we rushed him to hospital. He was coherent when we put him in his seat, took us 2 minutes to get there, his eyes rolled back as soon as we started taking him out of his car seat, he died in my arms as I rushed him in. They tried cpr for 50 minutes. I watched how fast 50 people ran into his room instantly, drilling into his legs, chest compression, defibrillation. They moved me to a quiet room, we had some hope a couple times. But he couldn’t fight anymore. He didn’t complain, did say ow, didn’t say he was scared. He was at peace. Gone so fucking soon. April 12, 2017 - August 7, 2022.