I am Disabled
4 months ago
That's a hard thing to say.
I can cook, clean, bathe, think. I can live well on the level of basic needs. I have all of my limbs. I am not, at least to my knowledge, dying of a degenerative disease.
I have a cognitive disorder. One which makes me very prone to accidents. One which gives me difficulty in myriad minor ways which all stack up to a serious problem if they compound just right. One of the most egregious for functioning is that I am numerically illiterate, and the severity changes with stress.
I am ASD + ADHD and Bipolar-Depressive. I have PTSD from childhood abuse and some unfortunate adult occurrences. I have severe anxiety, am borderline agoraphobic, and deal with many social issues as a symptom of those previous base-issues. I am also a natural introvert.
None of that had stopped me from trying to find something for years. None of that had stopped me from attempting a livelihood. Until recently. I finally gave up and admitted it, with the support of multiple mental health officials, I am disabled.
However - what eats at me is WHY I am disabled.
I am disabled, not because of who I am and my conditions. I am disabled because of the society I am living in.
American culture has little to absolutely no compensation for neuro-divergence, special social needs, the schedules of people with health issues or who aren't wholly diurnal, people who aren't extroverted, people with cognitive disorders, etc. Our society has a near total lack of empathy and sympathy for anybody not fully able-bodied and minded (ish). This is to say nothing of the severe economic and time demands it makes ON people who are able bodied to begin with.
American culture not only lacks compensation for, but is outright HOSTILE to, people who cannot drive. HOSTILE to people from poverty, which I am. I don't even have to begin touching on social issues like race, sex, and gender, again.
American society complains and insults me for being disabled. It bitches and bellows about having to support people like me. All the while ignoring that I, and those like me, are its fault.
In a better society. In a culture which valued equality and humanity and empathy. I would be able to live on my own with greater efficacy.
America makes disabled cases, and then blames the people it victimizes for the position it forces us into.
I can cook, clean, bathe, think. I can live well on the level of basic needs. I have all of my limbs. I am not, at least to my knowledge, dying of a degenerative disease.
I have a cognitive disorder. One which makes me very prone to accidents. One which gives me difficulty in myriad minor ways which all stack up to a serious problem if they compound just right. One of the most egregious for functioning is that I am numerically illiterate, and the severity changes with stress.
I am ASD + ADHD and Bipolar-Depressive. I have PTSD from childhood abuse and some unfortunate adult occurrences. I have severe anxiety, am borderline agoraphobic, and deal with many social issues as a symptom of those previous base-issues. I am also a natural introvert.
None of that had stopped me from trying to find something for years. None of that had stopped me from attempting a livelihood. Until recently. I finally gave up and admitted it, with the support of multiple mental health officials, I am disabled.
However - what eats at me is WHY I am disabled.
I am disabled, not because of who I am and my conditions. I am disabled because of the society I am living in.
American culture has little to absolutely no compensation for neuro-divergence, special social needs, the schedules of people with health issues or who aren't wholly diurnal, people who aren't extroverted, people with cognitive disorders, etc. Our society has a near total lack of empathy and sympathy for anybody not fully able-bodied and minded (ish). This is to say nothing of the severe economic and time demands it makes ON people who are able bodied to begin with.
American culture not only lacks compensation for, but is outright HOSTILE to, people who cannot drive. HOSTILE to people from poverty, which I am. I don't even have to begin touching on social issues like race, sex, and gender, again.
American society complains and insults me for being disabled. It bitches and bellows about having to support people like me. All the while ignoring that I, and those like me, are its fault.
In a better society. In a culture which valued equality and humanity and empathy. I would be able to live on my own with greater efficacy.
America makes disabled cases, and then blames the people it victimizes for the position it forces us into.
But I am different because I have a family member who has a special condition and that is why I don't discriminate against people who do.
Even if you have a disability (Or several) you are still a normal person and you should feel that way. Don't feel bad if you have all that, I remind you that people are not perfect.
To the last two, I’d like to say:
1. Yes, I’m using it as a crutch. Crutches let people know that there is a problem that prevents me from functioning normally, and I have something to utilize to help me appear more normal. People with an injured leg have crutches, a scooter, or wheelchair. Broken arms have a cast. Mental illness has a diagnosis that explains why I behave certain ways that I take medication for.
2. Yes, it’s all in my head. It’s called MENTAL illness because the illness happens in my brain. You know, which is inside my head.
We will stand strong though, because we are not alone, and you’re damn right we’ll advocate for one another.
"Saying mental illness is all in your head is like saying rectal cancer is all in your ass."
I suffer from chest pains that make things harder. I suffer from joint pain that make exercise and extended labor risky. I suffer from allergies that create migraines in spring and autumn that can disable my cognitive functions without medication.
I have autism (high functioning) where I cannot socialize without crutches. I make mistakes socially, I get confused and miscommunicate often.
I have depression (severe) which not just makes me feel sad on some days... But I lose motivation on things, even that which I enjoy, incredibly easy. It makes it near impossible to keep a job.
I have social anxiety which I need to take medicine to not get overwhelmed by just being in a store with more than 10 people...
I have paranoia from all the abuse I've received, making me not trust most people in my life, and even those I trust I have a grain of mistrust for because of being abused by my old best friends and spouses.
I have so much trauma in my life... That just... Doing anything is hard these days for me. I feel like Kismet wants to punch me in the nuts each time I try to do something to change...
I am disabled because I am unable to do much... But society also doesn't want me to do much. They don't want me around. They don't want someone with my problems around...
They don't compensate for us. They don't care about us. They just want to blame everything on us.
Not being disabled, myself, I probably don't have a lot of room to talk here. But I absolutely agree that we, as a society, need to do a lot more to provide assistance for those who need it, and to remember that this extends beyond people with "obvious" disabilities, like missing limbs, etc. To remember that not everyone can live the same way, work the same way, get around the same way, for a whole host of reasons, and that everyone deserves to live as freely and independently as they can. Without attacking them for it.
And to make it so that people can ask for the help they need without making them feel lesser, or making it an upsetting or humiliating experience, too.
This. THIS.
That shame kept me quiet for too long.
I really wish that we had a realistic system of care here.
A lot of things happen slowly, and then all of a sudden.
If it wasn't for my lover I'd have offed it already.
And thinking of that really angers me knowing that people, like you, who truly do need the disability and support to help them get ahead are not getting it.
ESPECIALLY if you are poor. ESPECIALLY x2 if you are black.
I've been officially diagnosed with BPD, depression, PTSD, and I think anxiety as well as "gender dysphoria" (I'm enby). I also have some major physical issues that crop up. Unofficially, the more I learn about ADHD, the more I'm convinced I have it; maybe with a touch of autism. If these were true, soooooo, so much would make sense. I already claim the ADHD unofficially. I can't get tested for it though, because it takes $$$ that I don't have...
If I work TOO hard, I start gasping for breath in these big whoop-like noises; I can't help that. Worse, my PTSD from a certain someone has me trying to force through it. The fuck are you sitting down for?? GET UP OFF YOUR ASS--... I feel anxious and like shit even when I MUST sit down. When I don't have a choice.
Then there's my lower back. I threw it out about three, four years ago. I lifted something heavy too fast and in the exact wrong way (was being aggressively hurried up by someone who was being angry and impatient), and my lower back cricked like rice crispies. It's been fucked up ever since, and can only take so much no matter how hard I try. My knees don't like me much, either. Between my back and my knees, watching me stand up is... something else.
I have to stand up slowly, arms back a little, then once I'm all the way up, I have to arch my back slowly to unlock my lower back. Even then I might still pull this stiff, jerky stumble for a few steps. It's REALLY bad if I don't stand up slowly, first. On the positive side, everyone who knows me knows better than to think I'm faking. Let's not get started on what the PMDD (Premenstrual Dysphoric Disoreder) does to my moods... I want so badly to have that shit taken out, but... $$$
I hear you on the driving, too. I HATE to drive. I know how, but even with glasses, my vision is horrible and my left eye is severely turned inward. I have ZERO depth perception, and even a small little four-door sedan feels like a big boat to me. My mom knows this. The only thing I'd feel comfortable with is a motorcycle. But again, $$$.
People don't realize just how deeply pervasive the ableist attitude of "if I can, you can" actually is. "well, if someone like THAT/ME with THEIR/MY issues can do that job, so can you!" How the fuck would you know?? I've heard that many times. The last few I fired back, and so far, haven't heard that again. Running a register? Nope. My brain freezes, and I have to go very slowly. Phones? No. Too much anxiety. People just can't fathom that not everyone is capable of the same things they are, and it drives me up a wall.
My mental issues give me both memory and motivation issues. I can be staring right at something, and either have no will (or not be ABLE) to do it, or forget it completely not five minutes later. People just don't get this.
Long rant is long. 😅😅😅
It all boils down to greed from the top. No wonder that Luigi guy became so popular.
I got my anger issues from my father, so it's been a struggle to keep my temper. I also struggle with depression.
The cold way this country treats the people like you is appalling, but it's not something that can't be fought. Never forget that you are not alone. Change will come, but only if enough people fight for it.