While I can't comment personally on the issue myself. I hear Loudan county is very good for seeking medical assistance. It's an outlier county in the dc area. Allegedly since they deal with politicians frequently they give customized concise health care assistance. Presumably because those are the types of people with enough reach to thrash someone's medical career if angered. I don't know if it's meaningful help foe you, since it's only a vague suggestion without source on the internet. But hopefully they would at least take your medical ailments seriously.

Similar, but not quite, I finally got my reinaud's diagnosis only after TikTok algorithm did algorithm things and this problem I've been having for 5 years that docs just didn't care about finding the cause was gifted to me right on my lap. So I was able to specifically ask for the tests for it. I'm glad I now know why, and how to help myself from not getting owies, but ffs why did *I* have to learn what my condition was first to have a dr finally get tests?

I have POTS and was diagnosed late, but I've had it my whole life. I discovered I had it after I mentioned the symptoms to someone, and they were like, "That sounds like..." And then I started studying it. I still don't have a ton of understanding on it, but... like nobody does, so that's a thing.

The things I've found that help are metoprolol for my heart rate when I'm exercising, making sure I have extra salt in my diet, and staying hydrated. Those are the three big things. Also, knowing how to handle heat because heat is a major trigger for me.

Other than that, compression garments, changing positions slowly and being ready for the dizziness, and knowing how to navigate that are the only things that have really mattered. The metoprolol is a new addition, and it works well to keep my heart rate low during exercise, but it makes me feel like garbage, too, so I'm trying to figure that out still.