FA+
Shop
Updates
15 years ago
General
So a few things have manifested themselves in my life that I desire to post about; after all, isn't that exactly the point of these journal-things?
About a year ago, I began to notice a pain in my leg; I figured it was just a cramp or something, except it got worse as the weeks went on. I am now walking almost constantly with the assistance of a cane (I can walk without it, but... well, the explanation's coming). After much deliberation and discovering several other seemingly-unrelated symptoms, my father and I have determined that I probably ended up with Marfan syndrome. Why he didn't tell me about this possibility before, I'm not sure. Anyway, it's a genetic disorder where basically my cells don't produce a specific protein necessary for certain connective tissue to retain its elasticity and strength. The leg pain is entirely phantom, a result of a swelling in my spinal cord; other symptoms of this include a major worsening of my narcolepsy, an increased frequency of headaches, a more difficult time thinking, and minor loss of control of extremities (and not in the fun way). I have also now concussively dislocated both shoulders, among other things that point to this disorder.
Will I be attending FC? I am certainly trying to. The world seems to not want me to, though. (Along these lines, anyone know of any job openings in the Bay area? At all? I'll be happy as a janitor. Anything to get me there and grounded so people stop turning me down simply because of my current lack of proximity when they say they'd otherwise hire me on the spot. >_> ) Will I have any of my books on me? Again, I'll try to, but this one is less likely.
A lot of things are hinging on the movie I'm going to be in. Oh yeah, by the way, totally going to be in a movie. Hoping to make enough to join the SAG with it.
India didn't pan out, mostly because of the Indian bureaucracy; I couldn't get the paperwork I needed (for which I needed my visa) before my visa expired. I might make another attempt, and in fact am still strongly looking at such an option, but it really is a pain in the ass to deal with their government.
About a year ago, I began to notice a pain in my leg; I figured it was just a cramp or something, except it got worse as the weeks went on. I am now walking almost constantly with the assistance of a cane (I can walk without it, but... well, the explanation's coming). After much deliberation and discovering several other seemingly-unrelated symptoms, my father and I have determined that I probably ended up with Marfan syndrome. Why he didn't tell me about this possibility before, I'm not sure. Anyway, it's a genetic disorder where basically my cells don't produce a specific protein necessary for certain connective tissue to retain its elasticity and strength. The leg pain is entirely phantom, a result of a swelling in my spinal cord; other symptoms of this include a major worsening of my narcolepsy, an increased frequency of headaches, a more difficult time thinking, and minor loss of control of extremities (and not in the fun way). I have also now concussively dislocated both shoulders, among other things that point to this disorder.
Will I be attending FC? I am certainly trying to. The world seems to not want me to, though. (Along these lines, anyone know of any job openings in the Bay area? At all? I'll be happy as a janitor. Anything to get me there and grounded so people stop turning me down simply because of my current lack of proximity when they say they'd otherwise hire me on the spot. >_> ) Will I have any of my books on me? Again, I'll try to, but this one is less likely.
A lot of things are hinging on the movie I'm going to be in. Oh yeah, by the way, totally going to be in a movie. Hoping to make enough to join the SAG with it.
India didn't pan out, mostly because of the Indian bureaucracy; I couldn't get the paperwork I needed (for which I needed my visa) before my visa expired. I might make another attempt, and in fact am still strongly looking at such an option, but it really is a pain in the ass to deal with their government.
fyi_dragon
fyi_dragon
~fyidragon
You say your father and you determined you have Marfan syndrome, does that mean you've seen a doctor about it or not? It sounds like at least regular check-ups of the heart are kind of important for that condition as that is where it gets dangerous for people. It also sounds like the symptoms are broad enough they overlap with a lot of other disorders.
Baphijmm
~baphijmm
OP
I have not seen a doctor about it yet, as I cannot afford such at the moment; however, it is a genetic disorder. I am aware of the necessity of regular check-ups, which is why I'm trying to get out of this location.
taiko
~taiko
I hope that you recover from this Baph...
