SO... I have been pretty quiet on here seeing as my last journal was for FWA '13. Most of it is because of a job that, while I loved, kept me busy 10-12 hrs 5-6 days a week. I use the past tense not because I have lost the job or been fired. Here is where my life has taken some twists recently. I want to preface this by saying I list these happenings for your information only. It is the hand I have been dealt and many are worse off than I so please don't think I am complaining or thinking I am worse off than anyone.

Around July 16th, I had to have my boss come pick me up and drive me to the doctor because I was suddenly suffering a significant loss of equilibrium. Not dizziness but a lack of balance. My job involves Driving a company vehicle and being anywhere from a basement to 25+ feet up a telephone pole. I was referred to a neurologist who through testing discovered that I suffer from Demyelinating Diffuse Peripheral Neuropathy. Basically my brain send the signal and my muscles do what they need to but because of ongoing damage to the sheathing of the peripheral nerves, the impulse gets where its going after its expected. Think of the orchestra of muscles and perfectly timed motions required to perform even simple tasks and you can see how this could be a problem. So since then I have been on short term disability while the doctors try to find out if I have the hereditary (non reversible and non treatable) or inflammatory (treatable) form. Either way, the likelihood of me returning to field work is fairly slim. Thanks to disability law I am not worried about having a position but I am ready to get back to work because I am going crazy sitting at the house.

All of this has cause a great deal of stress to my body which has cause my GI tract (I have Crohn's disease) to go crazy and honestly give me more daily distress then the neurological issues.

So there we are. Just wanted to let everyone who would be interested in knowing know what was going on with me.

I also wanted to share this as a prelude to a thought I would like you to consider...


Too many of us think of the disabled as those with "in your face" disabilities. Life has seen fit to give me two conditions that if you passed me on the street, you would never suspect anything unless you spent a few hours with me. Just think about that as you go about your life. Just another reason for us all to look out for eachother

You never know what the other person is going through.