my mom has dealt with epilepsy all her life since she was young.. her seizure active happens all over her brain and has grand and petite mal seizures practically once either every day or every other day...
so i know what your going through... i hope they can find the right meds for you to help.. and that the side effects aren't that horrible either...

hope everything works out better for ya. *hugs*

Everything will be okay. Its just so fresh at the moment.

The meds im moving to apparently have the side effect of being more alert and focused... which sounds great! But could lead to lack of sleep. We shall see!

kinda sounds like a plus except for the possible insomnia

Damn :( I'm sorry to hear that ~hugs~

"I really dont know what I can do at this point guys."

... Now might be a time to consider filing an application for a license for medicinal cannabis. A high CBD strain such as Charlotte's web might help a lot (and won't get you higher than a kite since CBD actually works to reduce the euphoria from the high.)

I mean, there's enough evidence to support it's use as a maintenance medication to seriously reduce the symptoms of epilepsy and we do have a system in place where if you have a legitimate need (which it seems you do) that you could use it to help control the seizures.

I know there's a lot of stigma associated but it is a very potent medicinal plant... And you don't have to "smoke" it... in fact, the best way to use it from what I can tell is orally in small doses so that after a while you'll build up a tolerance and won't be all stoney-stone. Barring that, a vaporizer also works without having to inhale burning plant matter (which is where all the nasty stuff comes from.)

I suggest this because if it is negatively affecting your quality of life then it bears looking into imo. Keep an open mind and do as much research as you can before deciding. Informed decisions are the better ones.

very good point. Only issue is I am seriously not interested in such alternatives. I dont believe I am at the point where I would need to look into it just yet. I may be confused now, but right now I need to explore MAKING things work on my own.

I certainly will keep the idea in mind though, least its not bottom of the barrel ideas!

Sorry to hear. I hope you will be feeling better with the new medication.

thanks for the well wishes!

Hope you get the help yah need. Lucky to be canadian. Something like this in the USA would bankrupt you. <3 yah

still gotta pay for the medications heh

What do you mean something like this would bankrupt you in the USA? Everyone in the USA is already bankrupt. :P

I'm not sure what a seizure looks like or anything. I know a while back I had been forced against my will for a week to take some new experimental medications mixed with 2 other medications, and it really screwed me up. For 2 years, I couldn't dream anymore and I was conscious through the entire night while sleeping, and when it was time to wake up, I started seeing my heart beat and hearing my breathing and I started shaking myself violently as possible to try and wake myself up because I was scared. Someone who saw this once said he thought i was having a seizure. It took many many years to get over it, and I still get this thing every so often, just very very very rarely now. So rarely that it would be impossible to diagnose now. I tried all the keywords that activate it while I'm sleeping during a sleep study, nothing worked. I guess I healed enough that it doesn't happen now.

I'm sowwy.... I understand about not being able to drive (wasn't able to drive for 14-15 months myself after my TBI), and medications are soooo not fun.... but at least you're alive, you can get stronger, just keep focusing on getting stronger.

I understand wholeheartedly what you're going through. I've had epilepsy for about 7 years now and I've had to go through some down right shitty doctors and many rounds of tests that never really lead anywhere other than "yes, you're epileptic". Thousands of dollars of dept from a few occasions of having a seizure somewhere and being toted off to a hospital just to wake up and be handed outrageous bills. ($90.00 for a bag of saline, $120.00 for blood work, $500.00+ for an ambulance, etc.)

It feels very dis-empowering, knowing that it can strike out of the blue and screw up your life, leaving you feeling like you've been tossed down a six story flight of stairs. Thankfully my medication has helped a lot ever since they found a decent dose to put me on. Phenytoin, 400 Milligrams a day seems to keep it mostly in check. My aura still flares up from time to time but I can usually focus past it. I wondered for so long why I had to be the one in a hundred people to end up with it, but I know there are many worse things I could have ended up with.

I hope it gets better for you. Just don't let it drag you down.

The irony to this post is that I just had another on Friday. Heh. Will give it a good read when I get home.