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Terrible day, important info that pertains to me....
10 years ago
I was stuck at the hospital for 8 hours today, I spent most of the day at the cafeteria where I had some chicken wraps and a pretzel bread sandwich which all contained things that are rapidly destroying me it seems (Tomatoes, Avocados, Chicken, Roast Beef, the damn thing the food was wrapped/contained it) had no idea till after my second appointment (which was 3pm with my first being 8am) also has a small cut of carrot cake and some cookies.... and diet Coke... which is bad for me because it contains phosphorous.
My kidneys are getting worse and worse, I could be on dialyses in like a year or so, if I don't do it I might die.
I could see about getting surgery to remove the fat off of me so they can do a kidney transplant, unsure.
Saw a different doctor today, told him about my pains like I have told the other doctors who have seen me, he diagnosed my extreme leg pains as being from diabetic neuropathy AND SOMETHING NEW.... Osteoarthritis, now that SOME ONE diagnosed that, maybe people will finally understand why it hurts so damn much to move instead of feeding me "if you walk you will do better" yeah I would, but you don't understand how much it hurts.
Anyway... so that is it for me eating out, buying pizza, I need to get on Weight Watchers or something so they can put together meals for me that are safe, but I will have to wait to see if SS will approve me, cause I won't be able to handle the cost on my own, maybe I could at the expense of not buying video games anymore (which I might as well be dead if I can't enjoy the most important fucking thing in my life) which would not last long anyway cause I dunno how long I will be able to draw anyway.
That is it, sorry this is a terrible journal, but at least you are not dealing with this, just reading about it (at least I hope none of you are going through this...)
Anyhoo that is it... other then my headset broke while I was at the hospital, so I had to get a new one... well my brother did since I could not afford it (neither could my brother really, but he knows that I use it for streams) so there is that.
Thanks for reading, I hope everyone is in good health, just go get checkups, you never know what is killing you till it's too late *hugs*
My kidneys are getting worse and worse, I could be on dialyses in like a year or so, if I don't do it I might die.
I could see about getting surgery to remove the fat off of me so they can do a kidney transplant, unsure.
Saw a different doctor today, told him about my pains like I have told the other doctors who have seen me, he diagnosed my extreme leg pains as being from diabetic neuropathy AND SOMETHING NEW.... Osteoarthritis, now that SOME ONE diagnosed that, maybe people will finally understand why it hurts so damn much to move instead of feeding me "if you walk you will do better" yeah I would, but you don't understand how much it hurts.
Anyway... so that is it for me eating out, buying pizza, I need to get on Weight Watchers or something so they can put together meals for me that are safe, but I will have to wait to see if SS will approve me, cause I won't be able to handle the cost on my own, maybe I could at the expense of not buying video games anymore (which I might as well be dead if I can't enjoy the most important fucking thing in my life) which would not last long anyway cause I dunno how long I will be able to draw anyway.
That is it, sorry this is a terrible journal, but at least you are not dealing with this, just reading about it (at least I hope none of you are going through this...)
Anyhoo that is it... other then my headset broke while I was at the hospital, so I had to get a new one... well my brother did since I could not afford it (neither could my brother really, but he knows that I use it for streams) so there is that.
Thanks for reading, I hope everyone is in good health, just go get checkups, you never know what is killing you till it's too late *hugs*
Hope.there is a way to keep the pain down other than taking a ton of medicine.
I really hope SS approves you so that you can work with the doctors to help yourself as much as possible. I just wanna send a letter to the SS people and explain how serious your pain is and how unfair it is. You're not gaming the system. You're one of the people who deserve help the most, and it makes me so angry to see that you're not getting it.
I don't know what else to say except that I'm worried about you, and I loves you! <3
Please keep me updated.
Me, I try to eat healthy, but when my depression hits, I just stop caring and eat whatever is available.
Fwiw, I had a kidney removed about 8 years ago - renal cell carcinoma. Nothing like your issue, but ... just ... yeah, kidney stuff. Brothers in kidneys, my friend. Stand united.
All the best, C
and i'm glad you got a diagnosis on that at least (though certainly not glad you have it!). i agree that people will probably be more understanding when you can tell them that you've got osteoarthritis, it isn't like you're not walking because you don't want to. unfortunately, most people seem to think that pain is just made up to cover laziness unless it's put in a package that they can comprehend.
and i hope social security approves you soon. make sure to tell your lawyer or whoever was helping you with it about the osteoarthritis! every extra diagnosis you can add ups your chance of being accepted. even they have to realize that you really can't work a 'normal' job eventually.
anyways, i hope that you get on ss soon, and that you can find a delicious food plan that helps you instead of hurting you. :3
*man much hugs!*