Narcolepsy?? Hypersomnia?? #2
6 years ago
A*ccept Differnces, B*e kind, C*ount your blessings, D*ream, E*xpress thanks, F*orgive, G*ive freely, H*arm no one, I*magine more, J*ettison anger, K*eep confidences, L*ove truly,
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So my first appointment with my psychiatrist was hellish. He was sooooo very dismissive. He pretty much tried to tell me that the reason I felt like I did was because I was a foreigner trying to be a mother in Japan. Ok, yes, that IS stressful, but it does NOT explain why after 8 hours of uninterrupted sleep (ok I wake up a lot buuut not by the kids and I actually sleep) I am already dead tired by 9 am or at least by 11, after waking up at 7. Or that I spend my day like that, or that I can dream stupidly fast. And this has been my life..it just a lot harder coping like this with two kids. And truely upsetting when little D says he wishes that His mommy wasn’t tired all the time, and wishes his daddy would have married someone that was more energetic.
Mommy is trying to get better sweetheart, I truly am.
So my mate and I decided to say bye bye to that doctor... who prescribed a highly addictive sedative that pretty much would even make me into more of a zombie... yes, I would get better sleep... but not at that price.
Soooooafter a bit of crying and finally reaching out to friends, they helped me find a sleep disorder doctor that specializes in narcolepsy! Just 30 minutes away.
I called, and they said they could see me that day! Talked to the doctor, who actually acted like a doctor and asked me the appropriate questions, told me I sound like I have a mild case of Narcolepsy if not Hypersomnias (which I never heard of until that day) and have a MSLT (multiple sleep latency test.... I have to nap 5x, for 35 minutes! 65 minutes apart for one day hooked up to a whole bunch of wires to see my brain waves) scheduled in two weeks from now.
So we will see where it goes!
Also want to say, those of you that have had mental affliction, and sought out help, and had to deal with bad doctor after bad doctor, you are so strong! I never knew how taxing and hard that was!!
Mommy is trying to get better sweetheart, I truly am.
So my mate and I decided to say bye bye to that doctor... who prescribed a highly addictive sedative that pretty much would even make me into more of a zombie... yes, I would get better sleep... but not at that price.
Soooooafter a bit of crying and finally reaching out to friends, they helped me find a sleep disorder doctor that specializes in narcolepsy! Just 30 minutes away.
I called, and they said they could see me that day! Talked to the doctor, who actually acted like a doctor and asked me the appropriate questions, told me I sound like I have a mild case of Narcolepsy if not Hypersomnias (which I never heard of until that day) and have a MSLT (multiple sleep latency test.... I have to nap 5x, for 35 minutes! 65 minutes apart for one day hooked up to a whole bunch of wires to see my brain waves) scheduled in two weeks from now.
So we will see where it goes!
Also want to say, those of you that have had mental affliction, and sought out help, and had to deal with bad doctor after bad doctor, you are so strong! I never knew how taxing and hard that was!!
*sighs...
I'm glad you got a real doctor. I've been down that road too. There's a lot of bad ones out there.
V.
I had a good friend that had to wear one of those. It did help him sleepso much better though! Little annoying at first.
And thank you. I am so happy I found someone that listened. I am also realizing that I found someone really fast!!! glad I got over my fear of reaching out to friends. They really helped!
V.
Point out to number one son that you appreciate his honesty but if daddy had married someone else he would have never have existed to make such a disrespectful comment.
How long have you had that doctor now?
I do tell my son I appreciate his honesty... but that it hurts. And that he wouldn’t be here if it wasn’t for me. He said he still wanted me around, but like for a grandma instead... hahahaha.... ugggghhhh
Nanna Nyeowzers time to draw a pic of Nyeowzers as a grandma lol. grey whiskers etc lol. It is unlikely that I shall ever be a nanna, my youngster would love kids but thinks it ethically immoral to pass on all the medical muck in our gene pool.
Kids can be hard and multi cultural ones even harder too sometimes. Little balls of energy that never stop and push all the wrong buttons but that is how they learn. *Hugs*
I also have those weird phantoms? I hear or feeling things right when I am sleeping or waking up... like last night was growling that startled me, the night before, something was on my face... is that with sleep apnea too?
How well does the CPAP help you? It is definitely worth looking into!
But it sounds like you found a good one now! Hope things go well in the future!
*HUGS*
I just have never reached out before... when Tsubasa died, that horrible depression which followed, when I was actually suicidal... I just come from one of those families, you just “tough it out”.... so it was a really hard step to say, hey... I need help. And it sounds like it really does happen so often. It is sad... I really have a whole new respect for the mental health field and all that goes on in it. I did before... loads of respect, but now it is like... *makes giant gesture with furry paws*
*Giant hugs*. Miss you wuffy Genius chef buddy.
*curcles up inbetween your wings*
I'm glad you found someone willing to listen and properly diagnose you? and help
*hugs*
I am really scared about doing my test... half of me is scared to pass it, half of me is scared to fail it. Another part of me is like, *happily squeals* Weeee I get to have my brain waves looked at while I dream!!! I ALWAYS wanted to have that done!! Cool scientific stufffffffff!
I should bake my doctor and those nurses cookies for being nice.