FA+
Shop
459
Views
Views
18
Favorites
Favorites
Category
Artwork (Digital) / All
Species Unspecified / Any
Size 1280 x 870
File Size 256 kB
Report this content
More from Inklop Bunny
Listed in Folders
I was born with F.O.P, Fibrodysplasia Ossificans Progressiva, a life-long condition that turns muscle into bone, locking joints & eventually the whole body. Muscle trauma triggers it, eg falls, surgery.
I can only move & use my right hand, and my left thumb. The rest of my body is rigid. Our life expectancy is in the 40s-50s. There’s no cure or treatment, yet.
There are 800 known cases throughout the world, at a ratio of 1-in-2-million. It is typically diagnosed at birth from the presence of bent big toes, but because FOP is so rare a correct diagnosis can take years and multiple hospitals, and tests.
FOP Awareness Day marks the anniversary of the FOP gene discovery, in April 2006!
We have a '#FunFeet4FOP' social media tag for photos involving novelty/fun socks and shoes.
More information is available at the international organisation:
https://www.ifopa.org/
I can only move & use my right hand, and my left thumb. The rest of my body is rigid. Our life expectancy is in the 40s-50s. There’s no cure or treatment, yet.
There are 800 known cases throughout the world, at a ratio of 1-in-2-million. It is typically diagnosed at birth from the presence of bent big toes, but because FOP is so rare a correct diagnosis can take years and multiple hospitals, and tests.
FOP Awareness Day marks the anniversary of the FOP gene discovery, in April 2006!
We have a '#FunFeet4FOP' social media tag for photos involving novelty/fun socks and shoes.
More information is available at the international organisation:
https://www.ifopa.org/
Category Artwork (Digital) / All
Species Unspecified / Any
Size 1280 x 870px
File Size 256 kB
Comments