[Journal 39] "Another Update" (SEMI-NSFW: RE Language)
4 years ago
Before I write, let me be perfectly clear - I have no idea how many people are going to read this. I thank those that do, and I appreciate those that leave comments a great deal.
So a few things to catch people up on. I've migrated mostly to InkBunny at the moment. This is mostly due to what I feel is a far easier system for uploading and submitting than presently here on FA. I might, might mind you, still upload on FA every now and again but mostly my collective works are up on IB - viewer discretion advised.
Since my last journal was some time ago, I should state that after 10 years I finally won my battle with Social Security here in the United States. Granted, I had to go through an entire decade of life seeing doctors, caseworkers, lawyers, and advocates to finally understand what I'd been telling them all along. Currently I'm unable to really work in just about any field I've had training. Between several old, prolonged medical issues, and new ones that cropped up within the last 3 years or so I just can't function at all in the job world. Fuck, I can barely function at life at times.
Sometime in mid 2019 I was officially diagnosed with a condition known as pseudo-dementia. Roughly speaking that means I have a significantly impacted and impaired short-term memory. On the good days, I forget very little. On the worst of days, I could wind up driving around for 3 hours because I can't remember where it was I was supposed to be going, when I was only driving to the corner store 3 blocks away. [Side Note]: (For those that didn't know, I FINALLY got my driver's license for the first time ever in my life a couple of years ago. After 20 years of trying to get that ball in the goal, I finally nailed it. On the applied driving test, it took two tries but I got it done. I failed the parallel-parking part only on a technicality. Here in Washington you have to park 18 inches from the curb, no more, no less. Right at 18. I was 18.25 inches from the curb so they had to fail me on that.) Living with this impacted, damaged, and strained memory is actually my absolute worst nightmare. I can watch, in relative real-time, the decline of my memory. My somewhat reasonable fear is that I'll eventually pass into full dementia at some point and well, that'll be all she wrote. I'm working to try to curb it, but I'd rather not get any more into it than I already have.
I'm still married to my husband. As of December 16th, it'll be 15 years on the button. We've had our share of fights over the last 1.5 decades, but we're still together through good or bad times. He's been there for me in one way or another, and many times I'd be lost without him.
Speaking of him, recently his car he's been driving for the last several years threw a rod. Now, he's got to drive my car for work, and I'm pretty much stuck at home in my wheelchair all day long - except when I have doctor's appointments. Recently even that became a challenge. I hate to throw one of the most major hospitals in my area under the bus as it were, but fuck it I'm going to blast 'em for this.
I am seeing a new specialist for my diabetes. It sucks, trust me. I've had to have two minor surgeries over the last year about 6 months apart. I'm not thrilled about it. When one factors in that A: Due to being adopted in California in 1982 and therefore the records of my biological parents being sealed and inaccessible to me, all my life doctors get super pissy with me over the fact that they can't establish a family history, B: My diet has been essentially the same since I was 5, though now with significantly less sweets, and C: Dealing with incompetent medical professionals for years. I go to OHSU in Portland, Oregon to see this specialist. Due to said memory, I forgot I left my keys on the coat hook on the wall. Sometime between going to bed, and waking up the following afternoon, my keys were stolen. These were all my goddamn keys. My car, Randy's car keys, Adrian (my roommate's) spare key, the mailbox key for my apartment, my pool/rec-room key, some keys that while serve no current purpose I keep for sentimental reasons, and a wash of lanyards/keychains that also carry significant sentimental value to me. I got the run-around over the last several days, where the office staff said they had nothing to go on and I should call the hospital police (they have their own department). The Hospital's Police at first kept telling me it was the office's problem, not theirs. It took me having to LITERALLY apply GODDAMN LOGIC to these cops to get them to take the investigation seriously. Allow me to clarify:
1. Due to traffic being so terrible that day, I was late. I was the last patient to be seen. I was the second to last person out the door, with the doctor walking out with me and locking up.
2. During the exam/introductory/base-line establishment visit I was told regarding a standard disclaimer that the rooms are cleaned every morning, and in-between visits. So, this meant that my room I was seen in would've been cleaned before it opened for visitors.
3. Since the room had to be cleaned before anyone else could use it, that meant the first person or first people that would've had access to that room would've been the cleaning crew. Due to current CDC guidelines, they have to clean every surface and that includes the coat hanger. They would've seen the keys first.
4. Then the staff would've gone in to make sure housekeeping did their job, meaning only the staff on duty would've had the next access to the keys.
5. Finally, in the largest leap, that meant that anyone that was a patient in the room would've had access.
So, the police finally took my complaints seriously.
Other than all that above, I'm just dealing with my usual stuff I've been handling my entire life. I still run tabletop RPG's over discord, I still play video games, and I still have a wonderful imagination. I still have my dream of voice acting, and doing voice-over work for somebody but that'll have to happen if it happens.
Either way, if you read, thanks. If you commented, big time thanks.
So a few things to catch people up on. I've migrated mostly to InkBunny at the moment. This is mostly due to what I feel is a far easier system for uploading and submitting than presently here on FA. I might, might mind you, still upload on FA every now and again but mostly my collective works are up on IB - viewer discretion advised.
Since my last journal was some time ago, I should state that after 10 years I finally won my battle with Social Security here in the United States. Granted, I had to go through an entire decade of life seeing doctors, caseworkers, lawyers, and advocates to finally understand what I'd been telling them all along. Currently I'm unable to really work in just about any field I've had training. Between several old, prolonged medical issues, and new ones that cropped up within the last 3 years or so I just can't function at all in the job world. Fuck, I can barely function at life at times.
Sometime in mid 2019 I was officially diagnosed with a condition known as pseudo-dementia. Roughly speaking that means I have a significantly impacted and impaired short-term memory. On the good days, I forget very little. On the worst of days, I could wind up driving around for 3 hours because I can't remember where it was I was supposed to be going, when I was only driving to the corner store 3 blocks away. [Side Note]: (For those that didn't know, I FINALLY got my driver's license for the first time ever in my life a couple of years ago. After 20 years of trying to get that ball in the goal, I finally nailed it. On the applied driving test, it took two tries but I got it done. I failed the parallel-parking part only on a technicality. Here in Washington you have to park 18 inches from the curb, no more, no less. Right at 18. I was 18.25 inches from the curb so they had to fail me on that.) Living with this impacted, damaged, and strained memory is actually my absolute worst nightmare. I can watch, in relative real-time, the decline of my memory. My somewhat reasonable fear is that I'll eventually pass into full dementia at some point and well, that'll be all she wrote. I'm working to try to curb it, but I'd rather not get any more into it than I already have.
I'm still married to my husband. As of December 16th, it'll be 15 years on the button. We've had our share of fights over the last 1.5 decades, but we're still together through good or bad times. He's been there for me in one way or another, and many times I'd be lost without him.
Speaking of him, recently his car he's been driving for the last several years threw a rod. Now, he's got to drive my car for work, and I'm pretty much stuck at home in my wheelchair all day long - except when I have doctor's appointments. Recently even that became a challenge. I hate to throw one of the most major hospitals in my area under the bus as it were, but fuck it I'm going to blast 'em for this.
I am seeing a new specialist for my diabetes. It sucks, trust me. I've had to have two minor surgeries over the last year about 6 months apart. I'm not thrilled about it. When one factors in that A: Due to being adopted in California in 1982 and therefore the records of my biological parents being sealed and inaccessible to me, all my life doctors get super pissy with me over the fact that they can't establish a family history, B: My diet has been essentially the same since I was 5, though now with significantly less sweets, and C: Dealing with incompetent medical professionals for years. I go to OHSU in Portland, Oregon to see this specialist. Due to said memory, I forgot I left my keys on the coat hook on the wall. Sometime between going to bed, and waking up the following afternoon, my keys were stolen. These were all my goddamn keys. My car, Randy's car keys, Adrian (my roommate's) spare key, the mailbox key for my apartment, my pool/rec-room key, some keys that while serve no current purpose I keep for sentimental reasons, and a wash of lanyards/keychains that also carry significant sentimental value to me. I got the run-around over the last several days, where the office staff said they had nothing to go on and I should call the hospital police (they have their own department). The Hospital's Police at first kept telling me it was the office's problem, not theirs. It took me having to LITERALLY apply GODDAMN LOGIC to these cops to get them to take the investigation seriously. Allow me to clarify:
1. Due to traffic being so terrible that day, I was late. I was the last patient to be seen. I was the second to last person out the door, with the doctor walking out with me and locking up.
2. During the exam/introductory/base-line establishment visit I was told regarding a standard disclaimer that the rooms are cleaned every morning, and in-between visits. So, this meant that my room I was seen in would've been cleaned before it opened for visitors.
3. Since the room had to be cleaned before anyone else could use it, that meant the first person or first people that would've had access to that room would've been the cleaning crew. Due to current CDC guidelines, they have to clean every surface and that includes the coat hanger. They would've seen the keys first.
4. Then the staff would've gone in to make sure housekeeping did their job, meaning only the staff on duty would've had the next access to the keys.
5. Finally, in the largest leap, that meant that anyone that was a patient in the room would've had access.
So, the police finally took my complaints seriously.
Other than all that above, I'm just dealing with my usual stuff I've been handling my entire life. I still run tabletop RPG's over discord, I still play video games, and I still have a wonderful imagination. I still have my dream of voice acting, and doing voice-over work for somebody but that'll have to happen if it happens.
Either way, if you read, thanks. If you commented, big time thanks.
Viperman
~viperman
Damn dude..... *hugs* Congrats on finally getting your SSI. I know it was a couple year battle for Matt to get his.
Bobby Thornbody
~bobbythornbody
Like Chris said, getting SSI was a pain in the butt, so I'm really glad you were finally able to succeed. I'm sorry things were such a mess getting there, but, hopefully, you can rest a little easier now. I'm also real sorry you've had to deal with so many other issues lately. *hugs tightly*
FA+
