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Update on Life with Chronic Illness
3 years ago
So, after slow months of showing recovery, not too long ago it suddenly all dropped back to zero. All it took was seemingly a couple of days sick with daycare plague provided by my baby niece, and I lost all my recovery I worked so hard for in my battle with chronic illness.
Would not recommend fibromyalgia to anyone.
Tried going back down in hours at work rather than go back to full time sick leave again, but stubbornness alone isn’t enough to help on a health issue.
The other day I had another meeting with my consultant and my supervisor and we all agreed I had struggled enough. I had nothing to prove other than the will to keep working cannot push a failing body forever. Best every party involved I gave up on keeping a physically draining work position in a career that’ll always be physical labor oriented.
Just signed the paper today that shows it is a mutual agreement, I’m not quitting and they are not firing me for being sick. We merely agree is best for everyone I leave. I get my benefits and liquidation, they got their back free in case anyone questions I’m not staying after fighting illness so long.
I gave at least 7 years of my life to that place. I started in apprenticeship to learn the trade, I had the education behind me to show my dedication. It was my life and identity, and that was part of my downfall because that only made me push myself for too long to stay, when my symptoms became more and more insistent.
Now I’m back to focus on recovery to at least be functional. Can’t even draw right now, due to the pain and trembling in hands and arms. Even that was something I pushed, as art is my way of expression.
I’m lucky living in Denmark, I have all the safety nets I can hope for as I focus on health. My contract doesn’t fully expire until August and thanks to the state’s support, I’ll still receive full payment until then.
I’ll be in process still to figure out something else for me with help from the many wonderful people working the system to help people like me. It has been brought up more than once that maybe, just maybe, I should consider disability pension at this point. But that’s still up in the air until I’ve talked in full with my case worker.
I won’t be in any dire situation economically, but I still got a lot of struggle ahead to focus on getting better and functional again. Future is rather unknown and scary. But I know I won’t be left to struggle on my own. Just gotta take it one day at a time.
So yeah, on art break again, dunno how long.
Would not recommend fibromyalgia to anyone.
Tried going back down in hours at work rather than go back to full time sick leave again, but stubbornness alone isn’t enough to help on a health issue.
The other day I had another meeting with my consultant and my supervisor and we all agreed I had struggled enough. I had nothing to prove other than the will to keep working cannot push a failing body forever. Best every party involved I gave up on keeping a physically draining work position in a career that’ll always be physical labor oriented.
Just signed the paper today that shows it is a mutual agreement, I’m not quitting and they are not firing me for being sick. We merely agree is best for everyone I leave. I get my benefits and liquidation, they got their back free in case anyone questions I’m not staying after fighting illness so long.
I gave at least 7 years of my life to that place. I started in apprenticeship to learn the trade, I had the education behind me to show my dedication. It was my life and identity, and that was part of my downfall because that only made me push myself for too long to stay, when my symptoms became more and more insistent.
Now I’m back to focus on recovery to at least be functional. Can’t even draw right now, due to the pain and trembling in hands and arms. Even that was something I pushed, as art is my way of expression.
I’m lucky living in Denmark, I have all the safety nets I can hope for as I focus on health. My contract doesn’t fully expire until August and thanks to the state’s support, I’ll still receive full payment until then.
I’ll be in process still to figure out something else for me with help from the many wonderful people working the system to help people like me. It has been brought up more than once that maybe, just maybe, I should consider disability pension at this point. But that’s still up in the air until I’ve talked in full with my case worker.
I won’t be in any dire situation economically, but I still got a lot of struggle ahead to focus on getting better and functional again. Future is rather unknown and scary. But I know I won’t be left to struggle on my own. Just gotta take it one day at a time.
So yeah, on art break again, dunno how long.
It'll get better eventually, at least.
Well, I just hope that you get better along the time and that you at least you manage to control this situation, finding a way to live a good life despite this.
Take care!
Any chronic illness is a struggle, but I've got the tools to help along with this one to find a balance that'll work ^^
That's good to know. I hope everything works out for you in the end.
I hope so too, only time will tell. Right now all I can do is begin the slow journey of recovery again and hope the spiral back down won't happen nearly as soon if it has to.
Let's both hope for the best and that you have a good recovery!