Apnea/Hypoxia
3 years ago
Hey folks!
I've been bad about keeping FA updated, lately, but I wanted to jump in with a crosspost from patreon: I was recently (and finally) diagnosed with severe sleep apnea/hypoxia, and I'm on the road for getting some treatment / a CPAP. I'm really hoping it helps with energy levels; I'm sure it's no secret that I've been a bit of a zombie for a while.
Anyway - nothing serious or in need of major concern; I'm mostly just excited to finally have some confirmation that there is a real problem and that it can be fixed.
I've been bad about keeping FA updated, lately, but I wanted to jump in with a crosspost from patreon: I was recently (and finally) diagnosed with severe sleep apnea/hypoxia, and I'm on the road for getting some treatment / a CPAP. I'm really hoping it helps with energy levels; I'm sure it's no secret that I've been a bit of a zombie for a while.
Anyway - nothing serious or in need of major concern; I'm mostly just excited to finally have some confirmation that there is a real problem and that it can be fixed.
FA+


Do they make battery-op machines?
*raises his claw*
So he set me up for a CPAP machine, i recommend the mask that has the mouth piece to breath in and the hope that is up at the nose. Never get the one
that shoots air down your sinuses because it dries you out and you get nose bleeds. It be like blowing an air towel dryer down your nose and it make you sneeze,
and might be stuffy.
Just experience. Get well soon.
Always use DISTILLED water. Never never never use tap water unless there’s nothing else available. It’ll foul up your machine.
Additionally, depending on what sort of strap/headgear you have you may need to change hairstyles for sleeping. Mine’s about shoulder length so I put it in a topknot/ponytail and it sits nestled in the strap, keeping my strap in place and my hair out of the way 😎
I had a huge energy boost after getting on my CPAP (couldn't make it through 16 hour shifts at a previous job before starting CPAP).
There are a few types of masks, but the one I use is a nose mask. It doesn't cover the mouth, which some find to be uncomfortable.
It works very well for me because I don't sleep with my mouth open.
Even if you have slept with your mouth open, it may work for you because that may have been due to the sleep apnea.
Your first CPAP will probably have to be purchased through your insurance, and that usually means you're going to have to go through a medical device provider. Which means they're going to charge a fucking massive premium.
My first machine cost me $1200, and insurance paid for 80% of that at the time. (Yay United Health Care!) I later find out that the same machine only costs $800 on cpap.com To say that I was more than a little pissed off would be an understatement. I now have the ResMed AirSense 10 Autoset. My provider wanted to charge my insurance $1900, and I would still be paying $800. (Boo, BCBS!) So I said "fuck it" and bought it direct from cpap.com for $800 and used my HCSA for $500, and then the rest I billed to my insurance.
The problem is that unless you're buying it directly without insurance, then you have to buy it from a provider, because insurance is going to want proof that you're actually using it. That means you have to either hook it up to cellular service, or bring in the memory chip every 30 days for three months.
Honestly, even though it's more expensive, I strongly suggest you get it from a provider, at least for your first one. They will help you adjust it, and most importantly of all, they will help you find the best mask.
Your mask is the most critical piece of the unit. If it doesn't fit, or feel comfortable, then you won't use it, or it won't work right.
I tried a nose cup, and I fucking hated it with a passion. So they had me try the nasal pillows, and I've been with those ever since. They're the smallest of all the masks, and they're so comfy. I sometimes get blow-thru, which is when I have my pressure set too high, and it starts blowing through my mouth. Very annoying, because it makes my mouth turn into a sandy desert. Ugh!
If your pressure level is less than 10, the pillows is usually the way to go. Between 10-15, a nasal cup. 15-18, and you'll want a nose/mouth mask. 18+, and you should probably be using a full face.
So! Best units?
ResMed. Nothing else. Seriously, they're the best and most durable. They're also the least expensive if you buy from cpap.com which is...kinda weird, really? Buying from the ResMed store is $1900, but cpap.com is only $913. Bulk discount maybe? I suggest the ResMed AirSense 10 Autoset.
Subscription service for supplies? Not just no, but FUCK NO!!! It's a fucking ripoff and a scam.
The masks last forever. Just make sure you wash them once in a while, because they can sometimes grow "things". Especially the nasal pillows. Those things are booger collectors. Once you get comfortable with your choice of mask, buy an extra one and keep it around in case the first one breaks, or the cat chews it up. Chances are, you'll never need it.
Hoses...are another story. And they're a fucking scam. This is the ResMed SlimLine tube. It's very light, very flexible, and very fucking fragile! Every three months, it tears right at the rubber connector, and no longer holds pressure. So don't go with the SlimLine. Either go with the Basic Bitch hose, or do yourself a comfy and get the ResMed ClimateLine heated hose. It's meant to work with ResMed AirSense, and it's a tough SOB.
More importantly, it's heated. This sounds dumb, but if you prefer to sleep in a cold room, then it's essential! The humid air coming from the machine will start to "rain out" in the hose during the night, and you'll hear it *pop*pop*pop* with every breath. And if you are suuuper unlucky, you'll shift and move the hose in just the wrong way, and get a slug of water right up your snoot.
Hose management!
Your hose is your connection to the machine. And having the hose connected to your schnozz is going to be a brand new experience that will be sure to cause considerable frustration. Here is a selection of devices, geegaws, thingamabobs and doohickeys that will help you manage that elephant's trunk. All sorts of things for you to spend money on! Yayyyy!
Me?
I wear a short-sleeve t-shirt to bed, slip the hose in my right sleeve, up through the neck, and connect it to my mask. It's now firmly attached to my body, and won't pull my mask off when I roll over.
Crisis averted.
Water!
I will say this once, and once only. DO NOT USE ANY FLUID OTHER THAN DISTILLED WATER. EVER. NOT EVEN ONCE.
Because it only needs to happen once.
You've been warned.
If you don't have any, just put the blank unit in and run it dry. It'll be fine for a night or two, unless you live in the desert or something. Besides, distilled water is cheap at WalMart. Buy two or three cases at a time, and stash them in your bedroom. Because I sleep on the second floor, and the bathroom is on the first (and cold) I sometimes use the empties for a pee bottle. I empty the collected urine into my compost pile, so bonus!
Just don't mix up the recycled jug for the fresh one, or you'll have one heck of a surprise when you turn on the machine. (No, it didn't happen to me. Yet.)
Battery backups!
Nothing sucks more than suddenly having to sleep without your wonderful machine, because the power went out. Or you want to go camping, but you don't want to strangle to death in your sleeping bag. Is there a solution? Of course there is!
Go here for a very special brand of sticker shock heart attack.
And for a slightly less heart attack inducing price of just $95, you can get a DC converter that can be hooked into your car lighter or connected to the battery.
So. Two specialized devices. One OMGWTFBBQ expensive, and the other only OMG expensive, but neither of them useful for anything other than it's intended purpose.
How about . . .
1 Deep Cycle Battery $90
1 Basic Battery Box $23
1 12v charger/maintainer to keep it fully charged $20
1 400 watt power inverter. $31.
$170 for a setup that will be able to charge your phones, run your laptop, and do a whole bunch of stuff too! Like running your CPAP for a week.
And finally...
JAIL-BREAK, BITCHES!
It's your damn machine! Once the 3-month insurance period is over, that sucker is YOURS! Not the insurance company, not the provider, not ResMed: it's YOURS! Wanna experiment with pressure values? Turn it up, turn it down? Adjust the humidity a bit?
To access the Clinical Menu, press and hold the dial and the Home button for three seconds. The Home screen is displayed with an unlock icon in the top right corner of the screen.
That machine is your bitch, now. Just don't go crazy and strangle yourself.
I'll add a few more things, like wash the water tank every week. Make sure you scrub it good, and then add a glug of hydrogen peroxide. That will cause any spots you missed to fizz, showing you where the bugs are hiding. Despite only using distilled water, things still collect and grow in there. Don't waste money on a hose brush unless you're immunocompromised and need to be extra careful. Don't bother with cleaning concentrate, either. Unscented soap is just fine.
Oh yeah, very important!
Don't pull the coupling out of the rubber fitting on your hose every morning! That will wear out the rubber, and the fitting won't stay inserted, meaning you'll need a new hose. Instead, just snap off the bridge and leave the coupler in the rubber fitting. When you go to bed, just snap it back together.
Good luck, and sleep well!
The CPAP machine has been a serious game changer for me. I'm getting better sleep, not waking up with migraines, and my short term memory isn't in shambles from oxygen depending.
It takes a bit of getting used to but so long as they get you set up with a good fit you'll get used to it in no time. Doc will probably have you follow up every few weeks so they can make tweaks to the settings to get you in the best comfort zone.
But yeah, you're gonna find it's like a whole new world with that machine. Good luck, dude!
Anyway, hope you can get the issues solved and find improvement.
A swift and sleepy recover to you!