Xray results. Nothing can be done. I'm not okay right now
10 years ago
I just got off the phone with the doctor regarding my xray results
I have a degenerative back disease and scoliosis as well as Spinal stenosis.
They are in a somewhat early stage so right now there is nothing that can be done other then pain management. It's all at a "wait and see what my body does" thing. I was told that some days I'll have good days and others i'll just have back pain. Which isn't true. I have back pain everyday and there is nothing I can do about it. I'm 24 years old and I kind of feel like I've been condemned. I'm probably over reacting because I literally just got the news. I might try to get a second opinion from a spine specialist. I dont know. Right now I just feel kinda shitty.
**Edit**
After sitting on it. I still feel shitty, but I also feel like I need to fight. I'm going to take the results to a specialist and see if I have any other options then just pain meds. I hate meds as I've always felt that it covers up the problem not fixing it. And while I will most likely always bee in pain I feel there is a chance I can fight this and at least keep it from getting worse. I guess i'm in the "angery" phase. I kinda hope I dont leave it. Anger is a good motivator. I think I always knew I had something like this. I dont want it to be a crutch. I can't let this destroy my dreams.
Thank you...everyone for kind words and support. you guys are what always ends up lifting me up and pushing me back into the world a fighter.
I can't disappoint you guys because that is so much worse then anything else I could be going through.
I have a degenerative back disease and scoliosis as well as Spinal stenosis.
They are in a somewhat early stage so right now there is nothing that can be done other then pain management. It's all at a "wait and see what my body does" thing. I was told that some days I'll have good days and others i'll just have back pain. Which isn't true. I have back pain everyday and there is nothing I can do about it. I'm 24 years old and I kind of feel like I've been condemned. I'm probably over reacting because I literally just got the news. I might try to get a second opinion from a spine specialist. I dont know. Right now I just feel kinda shitty.
**Edit**
After sitting on it. I still feel shitty, but I also feel like I need to fight. I'm going to take the results to a specialist and see if I have any other options then just pain meds. I hate meds as I've always felt that it covers up the problem not fixing it. And while I will most likely always bee in pain I feel there is a chance I can fight this and at least keep it from getting worse. I guess i'm in the "angery" phase. I kinda hope I dont leave it. Anger is a good motivator. I think I always knew I had something like this. I dont want it to be a crutch. I can't let this destroy my dreams.
Thank you...everyone for kind words and support. you guys are what always ends up lifting me up and pushing me back into the world a fighter.
I can't disappoint you guys because that is so much worse then anything else I could be going through.
FA+

I'd take the "nothing can be done" with a grain of salt. There's probably nothing they can do to stop the degeneration from taking place, but that doesn't mean there are no options. Surgery can help, but back surgery has a bad track record and should be a last resort. My doctor said that it can take up to a year to recover from the surgery IF all goes well. So, unless I start having difficulty walking or lose bowel or bladder control, surgery isn't going to happen.
As for pain management, I get subdural injections occasionally, but they are limited to three sets a year. The drawback is, they kill the pain but don't solve the problem, so while you're feeling good from the shots and doing whatever you like, you can end up giving your back a beating that you'll feel later.
You doctor can prescribe medications that will probably be effective enough to get you by most of the time. Just be careful with the strong stuff. Hydrocodone makes me feel so good it's scary, but if I use it daily for a week or so and then stop, I'll go through a couple of days feeling really down. It's easy to see why people get hooked.
Anyway, I hope this helps. You're not alone by any means.
Really I dont want to do pain management through pills if I can help it. Right now I've got some non-narcotic medications, though it doesnt help my lower back hardly at all. I'm trying to excersize more and get my back to in-general become stronger. I'm even considering more holstic stuff like acupuncture and theraputic yoga. Surgery will definitely be a last option unless the chances for getting rid of the back pain are substantially high. Narcotics terrify me almost more then surgery.
It's definitely been helpful to hear other people have this and have found ways to manage it. I can only hope that I can be one of those people as well. I'm still scared, but until I run out of options I gotta keep going. :)
After a lot of exam they finally decide to try injection in the spine, which actually corrected a lot of the problem.
This psysiotherapist, who is REALLY GOOD, also say to him that mind was the first thing to heal, cause his back was hurting him because something, in his mind, was hurting him. So, maybe can you find if something make you feel bad too? It can be almost anything you ncounter problem with... For our physio, a young person with back pain everyday isn't sick or condemned, they just need to figure out that something must be done to lower what they have to carry on their back.
(I must say I really trust these words, he's someone open and human, he try to heal you completely no matter what :) )
Hope you'll be better asap dear //hug//
I have a big hernia compressing my sciatic nerve, which make my left leg completely impossible to move because of the pain certain days. I'm 21 years old. Actually, the doc said "i can do nothing and seeing an osteopath or even a kine' will not help a lot. he will just put some vertebrea correctly, but not the hernia.
She sent me to a MRI + back specialist. This man sent me with my MRI result to someone who made an injection, saying i can do a second one if the first works (they put some cortisonal liquil in the compressed disc to make it take a correct place) but not enought. If 2 didn't worked correctly i had to go under spinal surgery. He also said "an osteopath will maybe help but i'm quite not sure, go ahead if you want but do not wish a very good result)
Even the osteopath warned me "i do not heal the spine, i only do what i can". Actually he does acupuncture + osteo movements. I went to see him 3 times, the first time before the injection (he put back 3 vertebraes in place and said me to go to do a MRI to be sure it was not an hernia (and see, it was one...) , and 2 after. Now, my back only does hurt when i'm really tired or stressed, and the pain is wayyy less hard to live under.
+ the osteo stated that i was under high level of stress and frustration, and said to me back pains are ofter made because of those factors, and if i can reduce stress/frustration, it could even disappear! An freaking big hernia like mine! (actually he understood my "mental pain" without even talking o me and even took more than one hour to talk to me, and even my mom to encourage her to help me (cause i can't talk... i mine, i'm totally blocked to do so). He said to me to make him up to news, and i think if i have any back pain (really painful) again, i'll go at him as fast as i can!
Well, all that to say: go to see a specialist. A second or even a third advice is always good to take! If i had listened to my doc, i would still be in complete pain, almost handicaped! Now pain is still here but way easier to live with. Well your problem is not an hernia, but i truly believe there might be something to do to help ease you pain. There is always solutions.
And to wait, i give you a big hug and as much of courage as i can give to you //hugs thigh//
Thank you <3
I do wish you the best of luck with everything. Being in constant pain is no good at all.
I'm scared but too stubborn to let it kick me down for good. I am glad that your daughter got some relief after talking to a specialist and i hope things continue to get better for her. Hearing that someone so young is in pain is heartbreaking <3
Stubbornness when it comes to your health is always a good thing. Stubbornness with health is what got me surgery after 11 years of pain. Things have gotten a lot better for her. She is now almost 10 and her headaches are controlled mostly by isolation. She gets to go in her room and kick her sisters out so it can be quiet for her. She has her own eye pillow that helps her greatly, too.
Right now I'm going to get a second opinion and do anything I can to make my back stronger. Now that i have a name I have something to fight against. Which I guess is better then constantly feeling like I'm fighting some bigger phantom pain.
And i do agree. though we live a lot longer there are more and more people getting these kinds of disorders due to the jobs that we do today.
I only herniated a disc that resulted in surgery, but I can confirm that regular doctors suck, and I mean they suck hard. The problem went misdiagnosed for a month as sciatica, since that was the nerve being cut off by the disc tissue that had made itself comfy in my spinal cavity. They finally sent me to a specialist when it continued to get worse, and in a matter of 3 days, I was correctly diagnosed, scheduled for, and underwent surgery.
I realize the problems are different, but specialists are awesome, so always get a second opinion about your spine, cause you only have one and it needs taken care of.
And I realize it isn't any consolation, but this all occurred when I was 18 years old and still in high school.(I'm 20 now) Spinal and arthritic issues are popping up in young people a lot more these days.
News like this suck, especially when you are young and all of a sudden a doctor tells you that you may never do something again due to your health situation. :/
You should go and get a second opinion just to make sure. Maybe a specialist also knows about therapeutic possibilities you can take to slow down the process. Try to learn more about the situation.
Best of luck. <3
And thank you <3
I will be praying for you. I hope for healing for your back and also an alternate way to deal with the pain, instead of using meds.
Pain meds scare me almost more then surgery. Gotta be proactive. Gotta stay positive. Till I have no options gotta be a fighter.
And Definitely. Stay Positive and Stay Strong.
Relaxing is something thats difficult, but I certainly do my best hahahaha
I agree with some people, take a second opinion, but don't lost your hope!
It won't be too bad once you and the doctors have gotten your heads together and worked out the correct pills and dosage to deal with the pain (long term pain killers are a pain in the ass, I know, but better than the pain).
Keep fighting! I'm sorry to hear this news, but you're so strong!!
I'll see about making this into a badge! <3 if there's anything else I can do... Let me know
(Edit: The weirdest thing happened...both ads were for the same back pain site...)
They're always watching!!
And thank you
My scoliosis still gets me down. All the muscles in my back, shoulders, and abs are slightly uneven, but it's enough that I notice it and it can get really discouraging. I'm not weak, by any means, but noticing that one side of my body is stronger than the other sucks; however, just gotta keep pushing through it. Unfortunately, scoliosis, barring some breakthrough, isn't curable, it's only manageable. Though, if it wasn't discovered until now, I'm guessing that the curve isn't that large.
It's okay to feel like the rug just got pulled out from under you. In many ways it has. But you've got support, and you've got friends, and whenever you need to scream and cry about it, that support will be there. Keep fighting, yes, absolutely - but give yourself permission to have "weak" days too. You're not a machine; you'll have days where it'll seem too much. But please don't give up. That's all I can ask.
But you know what? I looked for what can cause my pain... and i relised i have to change my lifestyle. But i can do domething.... and tada that one problem and others disapperaed/decreased.
Fuck the doctors. (most of the time)
Having lived with type 1 diabetes for 14 years, and severe seasonal allergies all my life, I can attest that sometimes the cards just aren't in your favour. Even though you weren't given a choice for your affliction, you still have a choice on how to deal with it. I surrendered a long time ago to the fact that some things are just out of our control, and the best you can do is make the most of what good things you have. If options are available to better your quality of life, I would encourage you to seize them. You're angry now, and you have every right to be. You'll be angry for a while. Eventually, though, I hope you can focus on things that ebb the pain (physical and emotional) and continue striving to be happy, strong, and creative. Your body might be failing you, but your mind is still intact. Use that to your advantage. =)
Take care !
*hugs but not too tight*
After consulting with a spine specialist to know more, you can look into these options. Your specialist may be able to advise you on this, but you should find a TCM specialist who has a diploma in both western medicine and TCM, and is in good standing. There are people out there who specialize in treating spine problems with TCM (usually combined with western medicine).
Depending on your case, the usefulness of the above things can vary a lot. In some cases with spine problems you simply can't stress the spine with martial arts, but in other cases it is beneficial. Tajiquan (commonly: Tai Chi) and Qigong (commonly: Chi Kung) work together and are partially overlapping, and are generally very good at improving health so if your doctors think it's OK, definitely try. Acupuncture may also help with pain and your body trying to deal with the problems.
TCM's approach is to improve the patient's health in general in addition to addressing specific problems, and thus strengthening the whole body, and its self healing mechanisms.
I have back pain and back problems since I was a little kid. During the time I practiced Kung Fu, (and along with it some basic Qigong) my back improved greatly. Now that I sit in front of a screen all day it's getting worse again, so as soon as things get better and I can afford I'm going to start practicing Taijiquan and Qigong.
So Traditional Chinese Medicine (TCM) is a very complex system. it has a history of several thousand years. It's rooted in Taoist philosophy. TCM's idea, is that the primary goal of medicine is to prevent health issues from ever happening, rather than waiting for them to happen and then treat them. It emphases a balanced lifestyle. It includes exercises, healthy diet, and even the elimination of negative thinking and negative emotions, which things they believe are affecting the balance of the Chi, and through that, may result in actual illness.
They believe that physical symptoms are only a result of energetic imbalances and so if you don't restore the balance within, any treatment is only symptom treatment. Nowadays in China, doctors get a diploma in both Western medicine (so they are certified doctors by Western standards as well) and TCM and use the two together, complimenting each other.
TCM has several tools for treatment on different levels. First is diet, which can solve less serious problems, the rest comes when diet is not enough. Moxibustion, Tui Na, Massage, Acupressure and exercises come next. Acupuncture, actually, is the "last resort" treatment they normally only use when there is a serious problem. According to TCM doctors, in China, acupuncture is rarely used, because most people already try to live a healthy life, and the reason that in the west the first thing coming to mind when hearing TCM is acupuncture, is that in the West most people have a terrible health to begin with.
All martial arts are a good way to exercise the body - even ones Westerners usually think to be all about fighting and tricks, like the Shaolin Kung Fu are actually deeply tied together with healing. From all forms of Wushu there are schools that focus more on the external exercise, and ones that focus more in the internal. Why I personally favor Taijiquan is that despite being a fully functional fighting style (contrary to the western stereotype of "Tai Chi"), it is an internal style, focusing a lot on Chi, and being deeply connected with Taoism and TCM, so it is considered by many to be the best choice if you want to focus on your health. Qigong is physical exercise aimed at strengthening Qi, so once again good for health, and Taijiquan has Qigong integrated.
As for the doctors, western doctors often don't know about TCM, or are skeptical/prejudicial so I would definitely try to find someone who has a diploma in both Western medicine and TCM - preferably a Chinese doctor who got their diplomas in China.
Just be aware that nowadays many "westernized" versions of "tai chi" and other stuff are out there, but they are usually kind of useless so make sure to seek an authentic teacher, who can prove their linage.When westerners reform oriental systems they usually lack proper understanding and so the core is lost.
Either way, I'm no professional, so by all means seek advice from someone who is.
Sorry for the long and windy comment, hopefully it can be of some use to you.