Saw the specialist yesterday and it is as everyone has been afraid. Our boy does in fact have a very severe type of skeletal dysplasia. And while it's a fatal one it is one that is not of genetic origin.. The specialist told us that we will not see this in another pregnancy if we are to try. More or less this is just one of those things that happen on a very rare occasion and there's nothing that can stop or reverse it.

He and the genetic counselor both agreed that we should continue on the road to carrying him to term, if at all possible as me being 24 weeks makes me viable and the state doesn't allow terminations after "not that I had planned to unless it was dangerous for both us."
and because of the fact that it is something that we wanted to do.

Our hearts are very heavy but we are going to treasure what little time we will get with him because no matter what is our son and he came to us for a reason.