A Much Less Fun Topic
3 years ago
My mother is dying. It hasn't been a quick or dignified death either. She is bedridden and drowning in her own lung fluid as cancer rapidly consumes her. The drugs that dull her agony rob her of everything that defined and characterized the woman I've known for over three decades. Most of the time, she sleeps. In her few waking moments, she is a vacant, twitching zombie, little more than an id only capable of rasping pleas for more pills.
Rarely, she emerges from the drug stupor haze, a portrait of quiet dread and exhaustion. In those moments, I don't see fear of imminent death in her eyes but fear for having to live another day through the merciless, unrelenting destruction of her body. In a rare moment of clarity, she intimated that she would suffer the agony if she could just have back control of her body, mind, and life.
Only a few months ago, the portrait was very different. I liked to joke that my mother was the most aptly named woman in the world- Mary Mills. She was always milling about. It occasionally seemed like she could teleport because you'd turn around for three seconds and she'd have somehow milled her dumpy little ass clear out of sight. I have distinct childhood memories of locating her in department stores by listening for the creak in her knee. Then, as if someone flipped a switch, she needed a walker. Another switch, bedridden. Another switch, hospice. The last switch is coming anytime now. Every day, I wake up wondering if today is the day I have to start the rest of my life without my mother in it.
She was the captain of this shitshow and she ran the ship with confident ease. Now, that responsibility falls to me and I am confident only in my ability to run aground and hit icebergs. I never realized how much my mother was doing behind the scenes. The number of small things I took for granted could fill a stadium. Looking back with newfound perspective, she seemed like the Wizard of Oz, silently directing and orchestrating countless gyres of chaos from behind black curtains.
I am now responsible for my developmentally delayed sister and BIL, their child, and a household. This feels like being dropped into the middle of a black ocean with no land in sight. I don't know which direction I should go. I don't know what horrors might lurch forth from the murky depths. All I have is a little paddleboat named Jordan. My partner has been keeping me afloat in all this but she too is slowly succumbing to cancer and it will only be so long before I have to do this allover again.
I tell you this so you know that if I disappear for awhile, it's because I'm trying to steer this shitshow. If you're a Patron and you want to bow out, don't feel guilty. I was barely making enough to cover even my electricity bill anyway. I won't hold it against you if you leave. Really. I mean it. Don't feel obligated. I will still try to upload art here and there when I can but I'll ask everyone not to have any strong expectations.
Don't worry about me. Worrying won't help anything. Just know that I'm still here, paddling along as best I can.
Rarely, she emerges from the drug stupor haze, a portrait of quiet dread and exhaustion. In those moments, I don't see fear of imminent death in her eyes but fear for having to live another day through the merciless, unrelenting destruction of her body. In a rare moment of clarity, she intimated that she would suffer the agony if she could just have back control of her body, mind, and life.
Only a few months ago, the portrait was very different. I liked to joke that my mother was the most aptly named woman in the world- Mary Mills. She was always milling about. It occasionally seemed like she could teleport because you'd turn around for three seconds and she'd have somehow milled her dumpy little ass clear out of sight. I have distinct childhood memories of locating her in department stores by listening for the creak in her knee. Then, as if someone flipped a switch, she needed a walker. Another switch, bedridden. Another switch, hospice. The last switch is coming anytime now. Every day, I wake up wondering if today is the day I have to start the rest of my life without my mother in it.
She was the captain of this shitshow and she ran the ship with confident ease. Now, that responsibility falls to me and I am confident only in my ability to run aground and hit icebergs. I never realized how much my mother was doing behind the scenes. The number of small things I took for granted could fill a stadium. Looking back with newfound perspective, she seemed like the Wizard of Oz, silently directing and orchestrating countless gyres of chaos from behind black curtains.
I am now responsible for my developmentally delayed sister and BIL, their child, and a household. This feels like being dropped into the middle of a black ocean with no land in sight. I don't know which direction I should go. I don't know what horrors might lurch forth from the murky depths. All I have is a little paddleboat named Jordan. My partner has been keeping me afloat in all this but she too is slowly succumbing to cancer and it will only be so long before I have to do this allover again.
I tell you this so you know that if I disappear for awhile, it's because I'm trying to steer this shitshow. If you're a Patron and you want to bow out, don't feel guilty. I was barely making enough to cover even my electricity bill anyway. I won't hold it against you if you leave. Really. I mean it. Don't feel obligated. I will still try to upload art here and there when I can but I'll ask everyone not to have any strong expectations.
Don't worry about me. Worrying won't help anything. Just know that I'm still here, paddling along as best I can.
FA+

It's a lot, there's no time for emotions only time to work.
As little as it does to help anything, my thoughts are with you, you're clearly a very strong person even if it doesn't feel like it sometimes.
That was the most intimate and frank assessment Ive ever read...
Do the best you can, every day. You are stronger than you think. Reach out to those around you when you need it; you'll find more support and strength than you could know.
(hugs)
I wish you strength, do what you need to in order to get through this. *hugs*
There are groups (like this one https://www.facebook.com/groups/pacdd/) for caregivers of adults with disabilities. I would encourage you to reach out and find a few...they'll make the process easier. I did that when my husband was diagnosed with Parkinson's and it's been quite a godsend, with advice and tips...and warnings about things I needed to know.
Due to this she also started developed even more diseases until COVID-fucking-19 came around and took her away from us even though she took two shots from the vaccine. My father still hasn't got over her loss ever since, and he griefs it everytime he sees something that remembers us from her.
Unfortunately personal losses make part of life, and leave big gaps inside us. What we can do with this is to learn to cope with it and find ways to keep us afloat and strong enough to keep on walking and live our lifes the best way we can. Moments like this show that life is too precious to be wasted, and it depends on us if we're gonna leave a good or bad legacy when it's time for us to depart this world as well.
Anyway, I wish you the best, and stay safe.
Best of luck to you, BJP. *hugs*
Trite as it may sound, I feel your pain.
I'm here if you need me. Like the radio in the paddleboat that picks up a sometimes-patchy voice from somewhere out there. Just to let you know you're not alone.
I truly hope something works out better for you
This is probably going to be a day-to-day survival from now on... you're super strong from what I've seen (here or on DA). Beins super strong doesn't mean that it won't super suck on every aspect of it, financially, morally and so on. I wish I could say it gets better after but... we never know actually.
All I can say from what I see is that you're making the best with what you get, and that isn't much. Actually, that is a lot of crap, yeah... or "shitshow" as you really fairly say.
I wish I could say better. I'd gladly make you or Jordan a gift art if that lifts you even slightly up, I just don't know how else to help (I suck at morally helping in general, my solutions are either gifting or offering distraction /o\)
Stay strong and love your family with all your heart.
the hits really don't stop coming.
of course i am going to worry, when i don't see / hear from you for weeks at a time, indefinitely
yet, bobbie_jean, you must focus on more pressing matters — i would be a tone deaf, dense, malignant asshole, if i made to act as if everything is still hunky•dory for you
yeah
what a shit•show
Right you are.
Still, thanks for your thoughts. ♥
When she passes you will think: 'Finally.." It's normal to think this and you're not a bad person for it. I don't know what to say, here that doesn't sound trite. You are experiencing what in an ideal world, no one would have inflicted upon them and it's terrible, it's heart breaking and mind numbing. But it will end, and you will be sad. You will shed tears and you will feel guilty for thinking 'finally it is over and she's dead' then you will tell yourself that it is horrible to think that because it somehow means you didn't care. If you didn't care then you would not be experiencing what you do now so do not, do not ever beat yourself up for feeling relieved that when she dies that you can feel better.
It's the worst, most brutal, grueling thing I've ever experienced.
also—speaking for myself, anyway—i simply don't want to be a burden to anyone (assuming, that is, i shall have anyone around to "burden" — as of now, it appears probable i won't); for no one to feel they are obligated to keep me around. . . . .
. . . . .i spell it out in advance: i don't want to be "around," essentially as a vegetable
— rex
((((((HUGS)))))), if o.k.?
You're going through so much right now, and it's never easy seeing loved one's suffer, much less die. The financial burden alone is crushing, but when you add all the emotional/spiritual stresses too?
I just hope that YOU have some form of support to help, and I realize how empty that sentiment can seem or even be.
I hate seeing good people go through hard times. Life not being 'Fair' is something most of us learn when we're kids, but hell, I'm hitting sixty years on this spinning rock, and I still have my moments when I curse the Fates.
Just know that for what it's worth, there are folks here who read people's comments, try to show we're there for them, being 'Pocket warriors' for them to ride along with and what not.
I dunno how you feel about things theological, and that can be such a delicate topic to broach even amongst folks you know.
I for one do believe there's 'Something' on the other side, and that we all have Souls. That how we live this life has a lot of weight determining what happens when we cross over, and how things play-out from there.
I've also studied philosophy, and found a lot of self-calm when things just seem out to get me, and it helps me to still pause amongst the insanity to appreciate little things that otherwise would be missed/overlooked.
You're cared about and loved, and we here at FA/Other sites appreciate not only your artistic talent, but your battles and trials, and the triumphs/accomplishments.